Volunteering

Watch this webinar to hear Ros Scott and Leena Pelttari talk about the work of the EAPC Task Force on Volunteering. Professor Catherine Walsh presents an overview of the research project ‘Understanding the impact of Covid-19 on hospice and palliative care volunteering’. There is a Q&A session and also be the opportunity to hear personal accounts from volunteers who contributed to the stories in the book which you can download below.

Download the books here:

Vanderstichelen S, Pelttari L, Scott, R. Evaluating the EAPC Madrid Charter on Volunteering in Hospice and Palliative Care: reflections on impact. 2021. Progress in Palliative Care

Volunteers’ Story Project

The Task Force is currently working on an electronic book of stories from volunteers from eight European countries about their experiences of working in hospice and palliative care.  Published in the volunteer’s native language and also in English, the stories will reflect not only on the activities of the volunteers but on what volunteering means to them. When completed it will be hosted on the EAPC website.

A paper on qualitative analysis of the stories published in 2020:

Scott, R., Goossensen, A., Pelttari, L. &S. Payne (2020) What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering. Scandinavian Journal of Caring Sciences, accepted for publication. https://onlinelibrary.wiley.com/doi/abs/10.1111/scs.12832

EAPC Volunteer Charter Impact Survey 

The aim of the Charter Impact survey was to explore the awareness of Charter, its reach and impact on volunteering and its usefulness as an advocacy tool. Thank you to everyone who took part in the survey.

Ros Scott, Co-Chair of the Task Force presented the early results at a plenary session at the EAPC World Congress on 23 May 2019.  Over 3,000 people had signed the Charter from 50 countries. In total 64 responses were received from 11 countries. Of these 56% of respondents were from HPC organisations,14% national organisations and 30% individuals from HPC teams. In terms of awareness and usage 64% had heard of Charter and (30%) had used it.  A link to the full presentation can be found here

International Symposium

An international symposium on volunteering in hospice and palliative care was held on May 25th 2019 at the EAPC World Congress, ESTREL Congress Centre, Berlin.  This was a lively and interesting day exploring current and future opportunities and challenges in HPC volunteering and a chance for discussion and sharing experiences. A link to the full report of the Symposium can be found here 

Background

Research suggests that volunteering plays a key role within hospice and palliative care services in Europe (Radbruch et.al., 2010, Burbeck et. al., 2014, Wothia et. al.,2015, Scott, 2015). Some services would be unable to function without this support (Scott, 2015).  Volunteers should be recognised as having their own unique place within the team alongside professionals and informal family carers (Goossensen, Somsen, Scott and Pelttari, 2016) Volunteers add to the quality of care and patient experience (Naylor, Mundle and Weaks, 2013, Faulkener and Davies, 2005), demedicalise the environment and provide an important social dimension to care (Guirgius-Younger, Kelley, and McKee, 2005). For volunteering to be successful, however, there must be effective approaches to management (Morris et. al., 2013).

The Second Task Force on Volunteering which began in 2016 continues to build on the  work undertaken by the first Task Force. The first EAPC Task Force on Volunteering which began in 2013 undertook a number of projects including: a European wide survey on volunteering, White Paper on Volunteering, several international Volunteering Symposia and volunteering Story Project on the experiences of volunteers.   All of this work led to the development of the EAPC Madrid Charter on Volunteering launched in 2017.

You can read the Executive summary of the First Task Force here and view the archived webpage here.

Click here to read the Development of the Charter – Background information

You can read the Charter here.

You can sign the Charter here

The Charter is available in the following languages: 

Danish

Dutch

Finnish

Flemish

French

German

Hungarian

Italian

Norwegian

Polish

Portuguese

Serbian

Spanish

Russian

Aims and Objectives  (Including Milestones)

During the life of the First Volunteering Task Force, information gathered through workshops at international volunteering symposia and open task force meetings suggested that effective recruitment and the training and education of volunteers and volunteer managers were essential to the  effectiveness of volunteers.  Whilst much research has focussed on the motivations of volunteers internationally, there is little research to date on the training of volunteers and therefore a lack of research evidence to support practice. We know from the work of the First Task Force that organisations and countries who are keen to develop volunteer services seek evidence-informed guidance and resources.

The aim of the Task Force is to:

Implement and monitor the aims of the EAPC Madrid Charter on Volunteering using the Charter Implementation Plan by:  

Encouraging and supporting research and practice projects across Europe to identify core elements of:

  • Effective recruitment – finding the right people for volunteer roles by December 2019
  • Education: competencies and training required for volunteers and volunteer managers by December 2018
  • The need for a quality framework for hospice and palliative care volunteering by2020

Leena Pelttari

Chair

CEO Hospice Austria
Vienna

Click here to contact by email

Ros Scott

Chair

Researcher and Independent Consultant,
Scotland UK

Click here to contact by email

Steering Group

  • Mijodrag Bogicevic/Katarina Sivcevic (Serbia)
  • Chiara Caraffa (Italy)
  • Professor Anne Goossensen (Netherlands)
  • Catherine Renard (France)
  • Steven Vanderstichelen (Belgium)
  • Professor Lukas Radbruch (Germany)
  • Catherine Walshe – UK – EAPC Board link
  • Katarina Sivcevic  (Serbia)

Partners

Hospice Austria

 Milestones achieved

  • Promotion of the EAPC Madrid Charter on Volunteering.  Development of social media plan for Charter. Achieved in excess of 3,000 signatures online and in print from 50 countries. Translation into 12 languages with more planned.
  • Online survey on the EAPC Madrid Charter completed and report being finalised. Proposed publication of short paper on findings and abstract to be submitted to EAPC Research Congress  in 2020. Work plan to be developed building on survey recommendations. First results were presented at a plenary session at EAPC World Congress in Berlin.
  • Education: competencies and training required for end of life volunteers in hospital. We are collaborating with 2020 iLive European funded Delphi study on HPC volunteer training, which was completed in June 2019. Paper being written and 5 pilot training programmes to be implemented in 5 hospitals across Europe.
  • A full day International Volunteering Symposium held at the EAPC Congress in Berlin on 25 May in cooperation with Hospice Austria – national organisation for Hospice and Palliative Care in Austria and German Association for Palliative Medicine. The day was attended by over 300 delegates from many different countries with internationally recognised plenary speakers. The publication from the event can be found here (new link needed as above)
  • Collaboration with EAPC Atlas research team on the first ever chapter on volunteering to be included in the Atlas. Co-authors of the Atlas Chapter and forthcoming academic paper.
  • Minimum data set for volunteering in Europe. Early work has developed an initial dataset and work to find funding to further develop this work is underway. Poster was awarded a green rosette at the EAPC World Congress in Berlin. Discussions are underway with a number of countries with a view to piloting the data set.
  • Open Task Force meeting with very interesting discussions with many participants from different countries at EAPC World Congress in Berlin
  • Regular EAPC Blogs on Volunteering written by steering group members
  • Volunteer training study will begin in November 2020 with the aim of identifying from different countries the key topics required for the training of HPC volunteers.

 

Milestones yet to achieve

  • Effective recruitment – finding the right people for volunteer roles by December 2019. Still seeking researchers willing to collaborate with this study.
  • The need for a quality framework for hospice and palliative care volunteering by 2020. Early discussions are underway.

Publications 

Scott, R., Goossensen, A., Pelttari, L. &S. Payne (2020) What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering. Scandinavian Journal of Caring Sciences, accepted for publication. https://onlinelibrary.wiley.com/doi/abs/10.1111/scs.12832

Goossenssen A, Somsen J, Scott R, Pelttari L (2016) Defining volunteering in hospice and palliative care in Europe: an EAPC White Paper. European Journal of Palliative Care. 23 (4): 184-191 view here

Scott, R., Pelttari, R. (2015) Comment EAPC Task Force on Volunteering: What progress has been made. European Journal for Palliative Care 22 (6) 265.

Pelttari, L., Pissarek, A., Scott, R. (2014) A new Task Force will investigate hospice volunteering in Europe. European Journal for Palliative Care 21 (3) 148,149.


Blogs

EAPC Blog 4 December 2019 Sallnow, L Volunteering, boundaries and power View https://eapcnet.wordpress.com/2019/12/04/volunteering-boundaries-and-power/

EAPC Blog 4 Nov 2019 Goossensen A. Scott, R How do we change the narrative around volunteers and clarify the value of their contribution? View https://eapcnet.wordpress.com/2019/11/04/how-do-we-change-the-narrative-around-volunteers-and-clarify-the-value-of-their-contribution/

EAPC Blog 9 October 2019 Scott, R. Pelttari, L My Care My Right – recpgnising the role of volunteers View https://eapcnet.wordpress.com/2019/10/09/my-care-my-right-recognising-the-role-of-volunteers/

EAPC Blog 18 September 2019 Walshe, C. Payne, S Investigating hidden assumptions about volunteering. View here

EAPC Blog 16 May 2019 Renard, C. Breaking the ice in palliative care… with an ice cream break. View here

EAPC Blog 16 May 2019 Scott, R, Pelttari, L Volunteers at the Heart of Hospice and Palliative Care: International Symposium at #EAPC 2019. View here

EAPC Blog 10 April 2019  Scott, R, Pelttari, L. Vanderstichelen, S. Update on the Voice of Volunteering – supporting and learning from the EAPC Madrid Charter on Volunteering in Hospice and Palliative Care. View here

EAPC Blog 25 March 2019 Vanderstichelen, S. Scott, R, Pelttari L. Can you trust a volunteer with confidential patient information? View here

EAPC Blog 18 July 2018 Bogicevic, M. The start of volunteering in hospice and palliative care in Serbia. view here

EAPC Blog 24 May 2018 Scott, R., Howlett, S. The changing face of volunteering in hospice and palliative care – new book launches at 10th EAPC World Research Congress. view here

EAPC Blog May 17 2017 Scott, R., Pelttari, L. EAPC Task Force: Launch of ‘Voice of Volunteering’: The EAPC Madrid Charter on Hospice and Palliative Care in Europe. view here

EAPC Blog 3 August 2016 EAPC White Paper: Goossensen, A., Somsen, J., Scott, R., Pelttari, L. Understanding volunteering in hospice and palliative care. view here

EAPC Blog April 25 2016 Scott, R., Pelttari, L. In their own words – The colourful lives of hospice and palliative care volunteers in Europe. view here

EAPC Blog 23 March 2015 Scott, R., Pelttari, R Colourful lives of hospice volunteers in Europe 2. view here

EAPC Blog 4 June 2014 Pelttari, L., Pissarek, A., Scott, R. (2014) Colourful lives of hospice volunteers in Europe. view here

EAPC Blog 7 January 2015 Pabst, K., Radbruch, L. EAPC Survey: The role and motivation of volunteers in hospice and palliative care in Europe. view here

References

Burbeck, R, et al. (2014) Volunteers In Specialist Palliative Care: A Survey Of Adult Services In The United Kingdom. Journal of Palliative Medicine 17 (5), pp 568-574.  doi: 10.1089/jpm.2013.0157

Goossenssen A, Somsen J, Scott R, Pelttari L (2016) Defining volunteering in hospice and palliative care in Europe: an EAPC White Paper. European Journal of Palliative Care. 23 (4): 184-191

Naylor C, Mundle C, Weaks L, Buck D (2013) Volunteering In Health And Care: Securing A Sustainable Future The Kings Fund. London 

Faulkener, M., and Davies, S. (2005) Social Support in the healthcare setting: he role of volunteers. Health and Social Care in the Community 13 (1): 38-45.

Guirguis-Younger M, Kelley M, McKee M (2005) Professionalization of hospice volunteer practices: what are the implications? Palliative and Supportive Care. 3 (2):143-144

Morris S, Wilmot A, Hill M, Ockenden N, Payne S (2013) A narrative literature review of the contribution of volunteers in end-of-life care services. Palliat Med. 27 (5): 428-36  Available from: Doi:10.1177/0269216312453608.

Radbruch, L, et al. (2010) White Paper On Standards And Norms For Hospice And Palliative Care In Europe Part 2: Recommendations From The European Association For Palliative Care. European Journal of Palliative Care. 17 (1): pp 22-33.

Scott R (2015) “We cannot do it without you”- the impact of volunteers in UK hospices. European Journal of Palliative Care. 22(2): 80-83

Woitha K, Hasselaar J, van Beek K, Radbruch L, Jaspers B, Vissers K (2015) Volunteers in palliative care – a comparison of seven European countries: A descriptive study. Pain Pract 15: 572–5