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Volunteering

EAPC Volunteer Charter Impact Survey

The aim of the Charter Impact survey was to explore the awareness of Charter, its reach and impact on volunteering and its usefulness as an advocacy tool. Thank you to everyone who took part in the survey.

Ros Scott, Co-Chair of the Task Force presented the early results at a plenary session at the EAPC World Congress on 23 May 2019.  Over 3,000 people had signed the Charter from 50 countries. In total 64 responses were received from 11 countries. Of these 56% of respondents were from HPC organisations,14% national organisations and 30% individuals from HPC teams. In terms of awareness and usage 64% had heard of Charter and (30%) had used it.  A link to the full presentation can be found here

For further information about the survey, please contact Ros Scott: r.z.scott@dundee.ac.uk 

International Symposium

An international symposium on volunteering in hospice and palliative care was held on May 25th 2019 at the EAPC World Congress, ESTREL Congress Centre, Berlin.  This was a lively and interesting day exploring current and future opportunities and challenges in HPC volunteering and a chance for discussion and sharing experiences. More information on the symposium is available here

Background

Research suggests that volunteering plays a key role within hospice and palliative care services in Europe (Radbruch et.al., 2010, Burbeck et. al., 2014, Wothia et. al.,2015, Scott, 2015). Some services would be unable to function without this support (Scott, 2015).  Volunteers should be recognised as having their own unique place within the team alongside professionals and informal family carers (Goossensen, Somsen, Scott and Pelttari, 2016) Volunteers add to the quality of care and patient experience (Naylor, Mundle and Weaks, 2013, Faulkener and Davies, 2005), demedicalise the environment and provide an important social dimension to care (Guirgius-Younger, Kelley, and McKee, 2005). For volunteering to be successful, however, there must be effective approaches to management (Morris et. al., 2013).

The Second Task Force on Volunteering will build on the  work undertaken by the first Task Force. The first EAPC Task Force on Volunteering which began in 2013 undertook a number of projects including: a European wide survey on volunteering, White Paper on Volunteering, several international Volunteering Symposia and Story Project."  To read the Executive summary of the First Task Force please click here and for the Full Report click here.

To read the background paper to the development of the Charter please click here, to read and sign the Charter please click here and for versions of the Charter in other languages please see the translations section of the EAPC Website.


Aims and Objectives  (Including Milestones)

During the life of the First Volunteering Task Force, information gathered through workshops at international volunteering symposia and open task force meetings suggested that effective recruitment and the training and education of volunteers and volunteer managers were essential to the the effectiveness of volunteers.  Whilst much research has focussed on the motivations of volunteers internationally, there is little research to date on the training of volunteers and therefore a lack of research evidence to support practice. We know from the work of the First Task Force that organisations and countries who are keen to develop volunteer services seek evidence-informed guidance and resources.


The aim of the Task Force is to:

Implement and monitor the aims of the EAPC Madrid Charter on Volunteering using the Charter Implementation Plan by:  

Encouraging and supporting research and practice projects across Europe to identify core elements of:

  • Effective recruitment – finding the right people for volunteer roles by December 2019
  • Education: competencies and training required for volunteers and volunteer managers by December 2018
  • The need for a quality framework for hospice and palliative care volunteering by 2020
     

Milestones achieved

  • Promotion of the EAPC Madrid Charter on Volunteering.  Development of social media plan for Charter. Achieved in excess of 3,000 signatures online and in print from 50 countries. Translation into 12 languages with more planned.
  • Online survey on the EAPC Madrid Charter completed and report being finalised. Proposed publication of short paper on findings and abstract to be submitted to EAPC Research Congress in Palermo in 2020. Work plan to be developed building on survey recommendations. First results were presented at a plenary session at EAPC World Congress in Berlin.
  • Education: competencies and training required for end of life volunteers in hospital. We are collaborating with 2020 iLive European funded Delphi study on HPC volunteer training, which was completed in June 2019. Paper being written and 5 pilot training programmes to be implemented in 5 hospitals across Europe.
  • A full day International Volunteering Symposium held at the EAPC Congress in Berlin on 25 May in cooperation with Hospice Austria – national organisation for Hospice and Palliative Carein Austria and German Association for Palliative Medicine. The day was attended by over 300 delegates from many different countries with internationally recognised plenary speakers. A publication from the event will be published later in 2019.
  • Collaboration with EAPC Atlas research team on the first ever chapter on volunteering to be included in the Atlas. Co-authors of the Atlas Chapter and forthcoming academic paper.
  • Minimum data set for volunteering in Europe. Early work has developed an initial dataset and work to find funding to further develop this work is underway. Poster was awarded a green rosette at the EAPC World Congress in Berlin
  • Open Task Force meeting with very interesting discussions with many participants from different countries at EAPC World Congress in Berlin

  • 4 EAPC Blogs on Volunteering written by steering group members

  • Effective recruitment – finding the right people for volunteer roles by December 2019. Still seeking researchers willing to collaborate with this study.

  • The need for a quality framework for hospice and palliative care volunteering by 2020. Early discussions are underway.

Milestones yet to achieve

  • Volunteer management training study still to be undertaken.  We are currently seeking researchers for collaboration - please contact us for further details.

Publications 

Goossenssen A, Somsen J, Scott R, Pelttari L (2016) Defining volunteering in hospice and palliative care in Europe: an EAPC White Paper. European Journal of Palliative Care. 23 (4): 184-191 view here

Scott, R., Pelttari, R. (2015) Comment EAPC Task Force on Volunteering: What progress has been made. European Journal for Palliative Care 22 (6) 265.

Pelttari, L., Pissarek, A., Scott, R. (2014) A new Task Force will investigate hospice volunteering in Europe. European Journal for Palliative Care 21 (3) 148,149.


Blogs

EAPC Blog 18 September 2019 Walshe, C. Payne, S Investigating hidden assumptions about volunteering. View here

EAPC Blog 16 May 2019 Renard, C. Breaking the ice in palliative care… with an ice cream break. View here

EAPC Blog 16 May 2019 Scott, R, Pelttari, L Volunteers at the Heart of Hospice and Palliative Care: International Symposium at #EAPC 2019. View here

EAPC Blog 10 April 2019  Scott, R, Pelttari, L. Vanderstichelen, S. Update on the Voice of Volunteering – supporting and learning from the EAPC Madrid Charter on Volunteering in Hospice and Palliative Care. View here

EAPC Blog 25 March 2019 Vanderstichelen, S. Scott, R, Pelttari L. Can you trust a volunteer with confidential patient information? View here

EAPC Blog 18 July 2018 Bogicevic, M. The start of volunteering in hospice and palliative care in Serbia. view here

EAPC Blog 24 May 2018 Scott, R., Howlett, S. The changing face of volunteering in hospice and palliative care – new book launches at 10th EAPC World Research Congress. view here

EAPC Blog May 17 2017 Scott, R., Pelttari, L. EAPC Task Force: Launch of ‘Voice of Volunteering’: The EAPC Madrid Charter on Hospice and Palliative Care in Europe. view here

EAPC Blog 3 August 2016 EAPC White Paper: Goossensen, A., Somsen, J., Scott, R., Pelttari, L. Understanding volunteering in hospice and palliative care. view here

EAPC Blog April 25 2016 Scott, R., Pelttari, L. In their own words – The colourful lives of hospice and palliative care volunteers in Europe. view here

EAPC Blog 23 March 2015 Scott, R., Pelttari, R Colourful lives of hospice volunteers in Europe 2. view here

EAPC Blog 4 June 2014 Pelttari, L., Pissarek, A., Scott, R. (2014) Colourful lives of hospice volunteers in Europe. view here

EAPC Blog 7 January 2015 Pabst, K., Radbruch, L. EAPC Survey: The role and motivation of volunteers in hospice and palliative care in Europe. view here

Partners  

Hospice Austria

References

Burbeck, R, et al. (2014) Volunteers In Specialist Palliative Care: A Survey Of Adult Services In The United Kingdom. Journal of Palliative Medicine 17 (5), pp 568-574.  doi: 10.1089/jpm.2013.0157

Goossenssen A, Somsen J, Scott R, Pelttari L (2016) Defining volunteering in hospice and palliative care in Europe: an EAPC White Paper. European Journal of Palliative Care. 23 (4): 184-191

Naylor C, Mundle C, Weaks L, Buck D (2013) Volunteering In Health And Care: Securing A Sustainable Future The Kings Fund. London 

Faulkener, M., and Davies, S. (2005) Social Support in the healthcare setting: he role of volunteers. Health and Social Care in the Community 13 (1): 38-45.

Guirguis-Younger M, Kelley M, McKee M (2005) Professionalization of hospice volunteer practices: what are the implications? Palliative and Supportive Care. 3 (2):143-144

Morris S, Wilmot A, Hill M, Ockenden N, Payne S (2013) A narrative literature review of the contribution of volunteers in end-of-life care services. Palliat Med. 27 (5): 428-36  Available from: Doi:10.1177/0269216312453608.

Radbruch, L, et al. (2010) White Paper On Standards And Norms For Hospice And Palliative Care In Europe Part 2: Recommendations From The European Association For Palliative Care. European Journal of Palliative Care. 17 (1): pp 22-33.

Scott R (2015) "We cannot do it without you"- the impact of volunteers in UK hospices. European Journal of Palliative Care. 22(2): 80-83

Woitha K, Hasselaar J, van Beek K, Radbruch L, Jaspers B, Vissers K (2015) Volunteers in palliative care – a comparison of seven European countries: A descriptive study. Pain Pract 15: 572–5

Chairs

Leena Pelttari

CEO Hospice Austria
Vienna

Click here to contact by email

Ros Scott

Researcher and Independent Consultant,
Scotland UK

Click here to contact by email


Steering Group

Mijodrag Bogicevic - BELhospice in Serbia

Professor Anne Goossensen - Netherlands

Professor Sheila Payne -  UK

Professor Lukas Radbruch - Germany

Catherine Renard – France

Steven Vanderstichelen - Gent University, Belgium

 

Ex Officio Board Link: Professor Catherine Walshe

 


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