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Heart Disease

Background

The number of people suffering from and dying of advanced heart failure is increasing and is expected to continue to grow in the coming decades. The progress in cardiological management has slowed the disease deterioration and has decreased substantially the risk of death, predominantly the sudden cardiac death. As result, people affected by heart failure live longer and are getting older, experiencing consequences of disease progression and aging including age related concomitant disease. All of these jeopardize the quality of life of affected people and increase the utilization of health service resources. Experiencing disease progression and threatening life limitation causes a number of symptoms and problems of emotional, psychological, social, existential/spiritual dimensions. These can be quite complex and can go fare beyond what the cardio-teams are used to address, but lying in the scope of usual multiprofessional PC services. In the modern medicine awareness of these kind of interdisciplinary needs should promote the cooperation disciplines i.e., cardiology and PC. Existing data suggest that large gaps exist in addressing symptom burden and PC needs of cardiac patients 1-3. Very few people with advanced heart failure and those approaching end of life, as well as their families receive appropriate PC support. This creates an urgent need to stimulate discussion on PC provision for people with heart disease. Involvement of PC into usual cardiac care improves advance care planning, quality of life, symptom control, addressing of psychosocial and spiritual problems and preventing of suffering should on the top of optimal cardiologic management.4 Specific task for cooperation between PC and cardiology should be more frequent reprogramming cardioverter-defibrillators to avoid high voltage interventions in people approaching predictable death.

References

  1. Kavalieratos D, Kamal AH, Abernethy AP, Biddle AK, Carey TS, Dev S, Reeve BB, Weinberger M. Comparing Unmet Needs between Community-Based Palliative Care Patients with Heart Failure and Patients with Cancer. J Palliat Med 2014;17:475-481.
  2. Xu J, Nolan MT, Heinze K, Yenokyan G, Hughes MT, Johnson J, Kub J, Tudor C, Sulmasy DP, Lehmann LS, Gallo JJ, Rockko F, Lee MC. Symptom frequency, severity, and quality of life among persons with three disease trajectories: cancer, ALS, and CHF. Appl Nurs Res 2015;28:311-315.
  3. Evangelista LS, Liao S, Motie M, De Michelis N, Ballard-Hernandez J, Lombardo D. Does the type and frequency of palliative care services received by patients with advanced heart failure impact symptom burden? J Palliat Med 2014;17:75-79.
  4. Rogers JG, Patel CB, Mentz RJ, Granger BB, Steinhauser KE, Fiuzat M, Adams PA, Speck A, Johnson KS, Krishnamoorthy A, Yang H, Anstrom KJ, Dodson GC, Taylor DH, Jr., Kirchner JL, Mark DB, O'Connor CM, Tulsky JA. Palliative Care in Heart Failure: The PAL-HF Randomized, Controlled Clinical Trial. J Am Coll Cardiol 2017;70:331-341.

Aims

1. To improve care for patients with advanced heart disease by establishing palliative care as a usual component of comprehensive care for people with heart disease.

2. To promote and consolidate therapeutic dialogue and cooperation between palliative care and cardiac teams, providing the best possible care for patients and the best possible support for their relatives.

3. To create a platform of exchange for experts dealing with palliative care for people with heart disease from different continents / across the world.

 

Publications and Presentations:

Piotr Aszyk SJ i wsp (2018) Declaration of the medical community representing cardiology, palliative care and internal medicine indicating the importance of palliative care in the comprehensive care for people with heart disease [language: Polish]. Palliat Med Pract 12(1):64-66. https://journals.viamedica.pl/palliative_medicine_in_practice/article/view/58274

Piotr Aszyk SJ et al (2018) Comment on the Declaration of the medical community representing cardiology, palliative care and internal medicine indicating the importance of palliative care in the comprehensive care for people with heart disease [language: Polish]. https://www.mp.pl/etyka/kres_zycia/179310,opieka-paliatywna-przy-ns

EAPC Blog Feb 22 2018 Winter Summit in Palliative Medicine – Heart and Spirit in Palliative Care view here

15th World Congress of the EAPC, Madrid May 2017: Meet the Expert Session "How to Overcome Barriers to Early PC Provision for People with Heart Failure view presentation here

*Martínez Sellés Oliveria Soares M, Díez-Villanueva P, Smeding RM, Alt-Epping B, Janssen DJ, Leget CJ, Albert M, Sobański P, Losada A, Oliver DJ. (2017) Reflections on ethical issues in palliative care for patients with heart failure. European Journal of Palliative Care 24(1): 18-22 view here

*This document is held under copyright by Hayward Group Ltd, publisher of the European Journal of Palliative Care. It may be downloaded for single academic use only. Reproduction for any other purpose is not allowed. For further information, please contact the journal by clicking here

EAPC Blog March 15 2017 Ethical issues in palliative care in heart failure

EAPC Blog Oct 19 2015 Task Force convened to improve care to millions with heart failure

8th EAPC World Research Congress, Lleida, Spain, June 2014 view presentation here

10th Kongress der Deutschen Gellelschaft fur Palliativmedizin, Dusserldorf, Germany, June 2014 view presentation here

Poster:

8th EAPC World Research Congress, Lleida, Spain, June 2014 view here

Heart Failure Congress 2014,17–20 May 2014, Athens, Greece view here

Abstracts:

15th World Congress of the EAPC, Madrid May 2017

Conferences:

Winter summit in palliative medicine Bydgoszcz, 12 December 2017: “Heart and Spirit
in Palliative Care” view programme here

Web-Interviews:

Where is Palliative care in Europe heading? An interview with Prof Philip Larkin, President of the EAPC. View here

How palliative care can help people with heart failure: An interview with Prof Sarah Goodlin. View here

Co-chairs

 

Piotr Sobanski              

Switzerland

Click here to contact by email

Phil Larkin   

Switzerland

Click here to contact by email


 
 

Click on the logo to read posts relevant to our work on the EAPC Blog.
Many have been contributed by our task force/reference group members

Date

Action

Feb 2014

Invitational workshop in Basel - Meeting of the Initiative Group.

June 2014

Official launch of the Task Force during the EAPC 8th World Research Congress in Lleida, Spain.

Oct - Dec 2014

Agreement of HFA to start Joint European Association for Palliative Care (EAPC) and Heart Failure Association (HFA) of the European Cardiac Society Task Force and final adjustment of the Task Force structure

May 2015

Meetings of EAPC representatives during EAPC Congress, Copenhagen and HFA representatives during HFA Congress, Seville 

Oct 2015

First Meeting of the Joint EAPC and HFA Task Force, Basel

Jun 2016   

HFA inspired by negotiation with EAPC TF recognizes the importance of the PC provision and decides to run own, separate Study Group

May 2017   

Re-launching of re-structured EAPC TF

2017/2018   

Work at Position Statement of the EAPC TF (currently under reviewing process)

2020

Task force completion