Children & Young People
The EAPC Children and Young People’s (CYP) Task Force is a small core group that aims to advocate for and drive the development of accessible and high-quality palliative care for children and young people through the EAPC. The CYP Taskforce brings together all those working to develop and sustain children’s palliative care services in order to expand the evidence base and share learning and research.
Aims and objectives
1. To bring together the wide range of professionals working to develop children’s palliative care in European countries and provide opportunities for sharing of information, research, education and advocacy.
2. To support the development and dissemination of the evidence base in children’s palliative care through identification of specific workstreams leading to published guidelines and standards.
3. To provide educational opportunities for those working in children’s palliative care through the development of paediatric sessions at EAPC events.
4. To support the development of palliative care for children and young people across Europe, through advocacy and awareness-raising, signposting organisations to the support offered by the International Children’s Palliative Care Network, the guidelines and standards developed by the Paediatric Taskforce and other useful resources.
Dr Kim Beernaert, Postdoctoral Researcher, University of Gent
Lizzie Chambers, Development Director, Together for Short Lives, UK
Dr Finella Craig, Consultant in Paediatric Palliative Medicine, The Louis Dundas Centre, Great Ormond Street Hospital for Children, UK
Dr Julia Downing, Chief Executive, International Children’s Palliative Care Network (ICPCN), UK/Serbia
Dr Lorna Fraser, Senior Lecturer, NIHR Fellow & Director of the Martin House Research Centre, University of York
Ana Lacerda, Children’s Palliative Care Advocate, Portugal
Silvia Lefebvre, Director, The Maruzza Foundation, Italy
Mette Raunkiaer, Senior Researcher, Centre for Rehabilitation and Palliation, Denmark
Meggi Schuiling-Otten, Director, Stichting Pal, the Netherlands
Natasha Pedersen, Norway – EAPC Board LInk
Achievements over the past year
Over the past year we have focussed on the following activities:
- The CYP Taskforce put together the programme, reviewed abstracts and chaired sessions at the first ever full day seminar at the EAPC World Congress in Berlin. The day was a huge success, with over 900 delegates registered (May 2019)
- The CYP Taskforce organised and took part in a children’s palliative care stream for the European Academy of Paediatric Societies Conference in Paris (November 2018).
- Members of the CYP Taskforce contributed to a paediatric chapter in the EAPC Atlas of Palliative Care being led by the University of Narvarra. This involved collaborating on the development of the indicator questions and identifying key contacts in children’s palliative care across Europe (Jan 18 – April 19).
- To continue to grow the network of children’s palliative care professionals across Europe.
- To lead the development of the programme for a children’s seminar at the EAPC World Research Congress in Palermo (May 2020).
- To support the development of the programme for a children’s seminar at the EAPC 17th World Congress in Helsinki (May 2021).
- Supporting a Europe-wide research project called Mapping the use of ‘cooling technologies’ by children’s hospices: an international study. In early 2020, Heads of Care in all children’s hospices in Europe, and other countries, will be invited to take part in this study by completing an on-line survey.
- To develop a Guide to Children’s Palliative Care which is appropriate for developed and developing countries across Europe and the rest of the world wishing to establish and advocate for children’s palliative care services (Timing TBC).