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EAPC Children & Young People Task Force

Background

The EAPC Children and Young People’s (CYP) Task Force is a small core group that aims to advocate for and drive the development of accessible and high-quality palliative care for children and young people through the EAPC.    The CYP Taskforce brings together all those working to develop and sustain children’s palliative care services in order to expand the evidence base and share learning and research.

Aims and objectives

1. To bring together the wide range of professionals working to develop children’s palliative care in European countries and provide opportunities for sharing of information, research, education and advocacy.  

2. To support the development and dissemination of the evidence base in children’s palliative care through identification of specific workstreams leading to published guidelines and standards.

3. To provide educational opportunities for those working in children’s palliative care through the development of paediatric sessions at EAPC events.

4.  To support the development of palliative care for children and young people across Europe, through advocacy and awareness-raising, signposting organisations to the support offered by the International Children’s Palliative Care Network, the guidelines and standards developed by the Paediatric Taskforce and other useful resources.

Achievements over the past year 

Over the past year we have focussed on the following activities:

  • The CYP Taskforce put together the programme, reviewed abstracts and chaired sessions at the first ever full day seminar at the EAPC World Congress in Berlin.  The day was a huge success, with over 900 delegates registered (May 2019)
  • The CYP Taskforce organised and took part in a children’s palliative care stream for the European Academy of Paediatric Societies Conference in Paris (November 2018).
  • Members of the CYP Taskforce contributed to a paediatric chapter in the EAPC Atlas of Palliative Care being led by the University of Narvarra.  This involved collaborating on the development of the indicator questions and identifying key contacts in children’s palliative care across  Europe (Jan 18 – April 19).
Current projects
  1. To continue to grow the network of children’s palliative care professionals across Europe.
  2. To lead the development of the programme for a children’s seminar at the EAPC World Research Congress in Palermo (May 2020).
  3. To support the development of the programme for a children’s seminar at the EAPC 17th World Congress in Helsinki (May 2021).
  4. To identify and carry out a collaborative research project that can be implemented across different European countries (Timing TBC).
  5. To develop a Guide to Children’s Palliative Care which is appropriate for developed and developing countries across Europe and the rest of the world wishing to establish and advocate for children’s palliative care services (Timing TBC).

Chairs

Lizzie Chambers

Together for Short Lives
United Kingdom

to contact by email please click here

Finella Craig

Great Ormond Street Children's Hospital
United Kingdom

to contact by email please click here


Steering committee

Dr Kim Beernaert, Postdoctoral Researcher, University of Gent

Lizzie Chambers, Development Director, Together for Short Lives, UK

Dr Finella Craig, Consultant in Paediatric Palliative Medicine, The Louis Dundas Centre, Great Ormond Street Hospital for Children, UK

Dr Julia Downing, Chief Executive, International Children’s Palliative Care Network (ICPCN), UK/Serbia

Dr Lorna Fraser, Senior Lecturer, NIHR Fellow & Director of the Martin House Research Centre, University of York

Ana Lacerda, Children’s Palliative Care Advocate, Portugal

Silvia Lefebvre, Director, The Maruzza Foundation, Italy

Mette Raunkiaer, Senior Researcher, Centre for Rehabilitation and Palliation, Denmark

Meggi Schuiling-Otten, Director, Stichting Pal, the Netherlands

Natasha Pedersen, Norway - EAPC Board LInk

 


 


 

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