Primary Care

Background

Palliative care still only reaches a minority of potential beneficiaries and is often introduced too late to prevent much distress. People with multi-morbidities and non-malignant conditions, frailty and dementia are still less likely to receive any form of palliative care than those with cancer. To gain universal coverage, a coordinated primary care and public health approach is necessary. Our vision is that palliative care is fully integrated in primary care systems internationally so that all patients have early access to a palliative care approach in the community (in their own home and in residential care facilities). We also believe that local communities should be involved in providing care and support.

Aims & Objectives

  1. Promote integration of primary care as an essential element of national palliative care frameworks, and palliative care as an essential element of national primary care frameworks.
  2. Foster training and educational development in timely palliative care for all primary care health professionals, at both undergraduate and graduate levels.
  3. Advocate that primary care practitioners providing palliative care have adequate resources and professional support to encourage safe and effective practice, and to promote health equity for people with life-threatening illnesses.
  4. Provide collegiate support to primary care practitioners as they develop evidence- based approaches to high quality primary palliative care.
  5. Support and develop research opportunities in primary palliative care – across EU countries.
  6. Identify mechanisms to support primary palliative care in all countries, with a specific focus on lower and middle income countries. 

How can I contribute?

If you are passionate about improving palliative care in the community in your country, please contact  our co-ordinator erika.ring@hospicefoundation.ie to register as a member of the wider group. 

We are also specifically looking for national representatives from every country in Europe, and currently lack these in the following countries: Albania, Andorra, Austria, Azerbaijan, Belarus, Bulgaria, Czech Republic, Estonia, Georgia, Greece, Latvia, Moldova, Montenegro, Russia, Serbia, Slovakia, Ukraine.

If you are willing to consider taking on this role please contact Sebastien Moine.

Professor Scott A. Murray

Chair

University of Edinburgh, Scotland
to contact by email please click here
Twitter: @scottamurrayed

Dr Sebastian Moine

Co-Chair & link to EAPC Board

Université Paris 13 Nord, Bobigny
to contact by email please click here
Twitter: @s_moine

Group Convenor

Erika Ring
Irish Hospice Foundation,
Ireland
to contact by email please click here

Executive Group members:

  • Dr Yvonne Engels, The Netherlands
  • Professor Julia Downing, UK and Uganda
  • Dr Steffen Eychmueller, Switzerland
  •  Dr Jordi Amblas, Spain
  • Dr Kirsty Boyd, UK
  • Dr Yasemin Kılıc, Turkey
  • Dr Alan Barnard, South Africa
  • Dr Maurizio Cancian, Italy

We have a membership list of 92 people from most European countries, all committed to the aims of the group. Permission to store contact details re-confirmed in 2020.

Partners:

  • EAPC Board of Directors  
  • EAPC Reference Group on Public Health and Palliative Care
  • World Health Organization (WHO)
  • International Children’s palliative Care Network (ICPCN)
  • International Association for Hospice and Palliative Care (IAHPC)
  • World Organisation of Family Doctors (WONCA)
  • International Primary Palliative Care Network (IPPCN)
  • European Forum for Primary Care (EFPC)
  • European research networks and other national and academic bodies 

Workplan

  • Encourage and support Palliative Care and Primary Care leaders in Europe

  • Identify core competencies in education and training for primary care professionals

  • Promote activities/sessions on primary palliative care in all EAPC sponsored conferences and primary care conferences

  • Participate in the WHO Technical Advisory Group (TAG) to input into manuals to help operationalise palliative care in the community.

  • In European countries not involved in the previous Taskforce, identify and support one or more key professional leaders to scope the barriers/facilitators

  • Produce an updated/ expanded toolkit to enhance 1) timely identification, 2) assessment, 3) care planning, 4) evaluation in primary care

  • Start international, collaborative small-scale research and student exchange projects including publication of reviews of European developments.   

  • Develop collaboration with organisations and countries outside Europe to help develop primary palliative care.

Publications

Munday D, Boyd K, Jeba J, et al. Defining primary palliative care for universal health
coverage. Lancet 2019; 394: 621–622 (doi: 10.1016/S0140-6736(19)31830-6)

Murray SA, Mitchell S, Boyd K, et al. Palliative care: training the primary care workforce is more important than rebranding. BMJ 2019; 365: l4119 (doi: 10.1136/bmj.l4119)

Mitchell S, Tan A, Moine S, et al. Primary palliative care needs urgent attention. BMJ 2019; 365: l1827 (doi: 10.1136/BMJ.L1827)

Ermers, D. et al., (2021) “Timely identification of patients in need of palliative care using the Double Surprise Question: A prospective study on outpatients with cancer” , Palliative Medicine, Vol. 35(3), pp592–602. https://doi.org/10.1177/0269216320986720

Dujardin J, Schuurmans J, Westerduin D, Wichmann A, Engels Y. The COVID-19 pandemic: a tipping point for advance care planning? Experiences of general practitioners. Accepted for Publication. Pall Med 2021.

Mason B, Kerssens JJ, Stoddart A, et al (2020) “Unscheduled and out-of-hours care for people in their last year of life in : a retrospective cohort analysis of national datasets” BMJ Open, 10:e041888. doi: 10.1136/bmjopen-2020-041888. Significance: High frequency of acute care needed out-of-hours for people in last year of life in UK.

 

English VersionOther Languages 
Palliative care and multi-morbidity: 4 key steps

Palliative care and multimorbidity video

 
EAPC Infographic (2019)Developing Palliative Care in Primary Care infographic  

EAPC Toolkit (2019)

Toolkit for the development of palliative care in primary care 
EAPC Toolkit 2019 Video 
EAPC Report (2015)Promoting palliative care in the community- producing a toolkit to improve and develop primary palliative care in different countries internationally 
Original article (Palliative Medicine, 2015)Promoting palliative care in the community: Production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care view here 
EAPC Toolkit (2014)Toolkit for the development of palliative care in the community

French translation

German translation

Italian translation