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Primary Care

Palliative care still only reaches a minority of potential beneficiaries and is often introduced too late to prevent much distress. People with multi-morbidities and non-malignant conditions, frailty and dementia are still less likely to receive any form of palliative care than those with cancer. To gain universal coverage, a coordinated primary care and public health approach is necessary. Our vision is that palliative care is fully integrated in primary care systems internationally so that all patients have early access to a palliative care approach in the community (in their own home and in residential care facilities).


Rationale

Palliative care still only reaches a minority of people who could benefit from a holistic approach to care as their health declines, and is often not introduced until the terminal stage of their illness. People with multi-morbidities and non-malignant conditions, frailty and dementia are still less likely to receive any form of palliative care than those with cancer. To gain universal coverage, a coordinated primary care and public health approach is necessary 

Aims & Objectives

  1. Promote integration of primary care as an essential element of national palliative care frameworks, and palliative care as an essential element of national primary care frameworks. 

  2. Foster training and educational development in timely palliative care for all primary care health professionals, at both undergraduate and graduate levels. 

  3. Advocate that primary care practitioners providing palliative care have adequate resources and professional support to encourage safe and effective practice, and to promote health equity for people with life-threatening illnesses. 

  4. Provide collegiate support to primary care practitioners as they develop evidence- based approaches to high quality primary palliative care. 

  5. Support and develop research opportunities in primary palliative care – across EU countries. 

  6. Identify mechanisms to support primary palliative care in all countries, with a specific focus on lower and middle income countries. 


How can I contribute?

If you are passionate about improving palliative care in the community in your country, please contact  our co-ordinator marie.lynch@hospicefoundation.ie to register as a member of the wider group. 

We are also specifically looking for national representatives from every country in Europe, and currently lack these in the following countries: Albania, Andorra, Austria, Azerbaijan, Belarus, Bulgaria, Czech Republic, Estonia, Georgia, Greece, Latvia, Moldova, Montenegro, Russia, Serbia, Slovakia, Ukraine.

If you are willing to consider taking on this role please contact Sebastien Moine.


Workplan

Year 1 - 2017

Encourage and support Palliative Care and Primary Care leaders in Europe
Identify core competencies in education and training for primary care professionals
Promote activities/sessions on primary palliative care in all EAPC sponsored conferences and primary care conferences
Participate in the WHO Technical Advisory Group (TAG) to input into manuals to help operationalise palliative care in the community. 

Year 2 - 2018

In European countries not involved in the previous Taskforce, identify and support one or more key professional leaders to scope the barriers/facilitators
Produce an updated/ expanded toolkit to enhance 1) timely identification, 2) assessment, 3) care planning, 4) evaluation in primary care
Start international, collaborative small-scale research and student exchange projects including publication of reviews of European developments 

Year 3 - 2019

Continue identification of and partnership with primary palliative care champions throughout Europe
Develop collaboration with organisations and countries outside Europe to help develop primary palliative care

Year 4 - 2020

Publish a white paper on promoting primary palliative care in all countries
Submission of an EU research or quality improvement proposal. 


Members of Reference Group 

Chairs: Professor Scott A Murray & Dr Sebastien Moine

Coordinators: Ms Marie Lynch & Dr Yvonne Engels, 

Members: Prof Geoff Mitchell, Professor Julia Downing, Dr Steffen Eychmueller, Dr Xavier Gomez-Batiste, Dr Jordi Amblas, Dr Kirsty Boyd, Prof Nils Schneider.

Partners:

A close liaison with a variety of International organisations will be maintained:

  • EAPC Board of Directors  
  • EAPC Reference Group on Public Health and Palliative Care
  • World Health Organization (WHO)
  • International Children’s palliative Care Network (ICPCN)
  • International Association for Hospice and Palliative Care (IAHPC)
  • World Organisation of Family Doctors (WONCA)
  • International Primary Palliative Care Network (IPPCN)
  • European Forum for Primary Care (EFPC)
  • European research networks and other national and academic bodies 

 
Publications

Palliative care from diagnosis to death

 

English Version

Other Languages 

EAPC Toolkit (2014

Toolkit for the development of palliative care in the community

French translation

German translation

Italian translation

 

EAPC Report (2015)

Promoting palliative care in the community- producing a toolkit to improve and develop primary palliative care in different countries internationally

Original article (Palliative Medicine, 2015)

Promoting palliative care in the community: Production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care

Chairs

Professor Scott A. Murray

University of Edinburgh, Scotland

to contact by email please click here

Twitter: @scottamurrayed

Dr Sebastian Moine

Université Paris 13 Nord, Bobigny

to contact by email please click here

Twitter: @s_moine

 

Coordinators

Ms Marie Lynch

The Irish Hospice Foundation, Dublin

to contact by email please click here 

Twitter: @marie7732

Dr Yvonne Engels

Radboud University Medical Centre, Radboudumc

to contact by email please click here

Twitter: @y_engels