X

Primary Care

Update May 2020..please see this blog:

COVID-19 and palliative care: Scale up provision in every country – especially in primary care

The Covid-19 pandemic is causing distressing deaths in terrible social isolation to tens of thousands. There is a compelling case to scale up palliative care to help people live and die as well as humanly possible. As palliative care enthusiasts, we must speak out now so that our countries, and practices, can grasp this moment in history.

Open meeting of the EAPC Primary Palliative Care Reference Group at the EAPC 11th World Congress held virtually  8-9th October 

Background

Palliative care still only reaches a minority of potential beneficiaries and is often introduced too late to prevent much distress. People with multi-morbidities and non-malignant conditions, frailty and dementia are still less likely to receive any form of palliative care than those with cancer. To gain universal coverage, a coordinated primary care and public health approach is necessary. Our vision is that palliative care is fully integrated in primary care systems internationally so that all patients have early access to a palliative care approach in the community (in their own home and in residential care facilities).

Aims & Objectives

  1. Promote integration of primary care as an essential element of national palliative care frameworks, and palliative care as an essential element of national primary care frameworks.
  2. Foster training and educational development in timely palliative care for all primary care health professionals, at both undergraduate and graduate levels.
  3. Advocate that primary care practitioners providing palliative care have adequate resources and professional support to encourage safe and effective practice, and to promote health equity for people with life-threatening illnesses.
  4. Provide collegiate support to primary care practitioners as they develop evidence- based approaches to high quality primary palliative care.
  5. Support and develop research opportunities in primary palliative care – across EU countries.
  6. Identify mechanisms to support primary palliative care in all countries, with a specific focus on lower and middle income countries. 

How can I contribute?

If you are passionate about improving palliative care in the community in your country, please contact  our co-ordinator Deirdre.Shanagher@hospicefoundation.ie to register as a member of the wider group. 

We are also specifically looking for national representatives from every country in Europe, and currently lack these in the following countries: Albania, Andorra, Austria, Azerbaijan, Belarus, Bulgaria, Czech Republic, Estonia, Georgia, Greece, Latvia, Moldova, Montenegro, Russia, Serbia, Slovakia, Ukraine.

If you are willing to consider taking on this role please contact Sebastien Moine.


Workplan

Years 1 and 2 - 2017 - 2018

  • Encourage and support Palliative Care and Primary Care leaders in Europe
  • Identify core competencies in education and training for primary care professionals
  • Promote activities/sessions on primary palliative care in all EAPC sponsored conferences and primary care conferences
  • Participate in the WHO Technical Advisory Group (TAG) to input into manuals to help operationalise palliative care in the community.
  • In European countries not involved in the previous Taskforce, identify and support one or more key professional leaders to scope the barriers/facilitators
  • Produce an updated/ expanded toolkit to enhance 1) timely identification, 2) assessment, 3) care planning, 4) evaluation in primary care
  • Start international, collaborative small-scale research and student exchange projects including publication of reviews of European developments 

Year 3 - 2019

Continue identification of and partnership with primary palliative care champions throughout Europe
Develop collaboration with organisations and countries outside Europe to help develop primary palliative care

Year 4 - 2020

Publish a white paper on promoting primary palliative care in all countries
Submission of an EU research or quality improvement proposal.  

Partners:

A close liaison with a variety of International organisations will be maintained:

  • EAPC Board of Directors  
  • EAPC Reference Group on Public Health and Palliative Care
  • World Health Organization (WHO)
  • International Children’s palliative Care Network (ICPCN)
  • International Association for Hospice and Palliative Care (IAHPC)
  • World Organisation of Family Doctors (WONCA)
  • International Primary Palliative Care Network (IPPCN)
  • European Forum for Primary Care (EFPC)
  • European research networks and other national and academic bodies 
Global policy documents:
Publications

EAPC Blog Posted on April 7, 2017 Palliative care from diagnosis to death

EAPC Blog Paosted on April 23, 2019 Strictly Come Dying: Will it be a fast dance or a slow waltz? 

Munday D, Boyd K, Jeba J, et al. Defining primary palliative care for universal health
coverage. Lancet 2019; 394: 621–622 (doi: 10.1016/S0140-6736(19)31830-6)

Banks I, Weller D, Ungan M, et al. ECCO Essential Requirements for Quality Cancer Care: Primary care. Crit Rev Oncol Hematol 2019; 142: 187–199 (doi: 10.1016/J.CRITREVONC.2019.07.007)

Murray SA, Mitchell S, Boyd K, et al. Palliative care: training the primary care workforce is more important than rebranding. BMJ 2019; 365: l4119 (doi: 10.1136/bmj.l4119)

Mitchell S, Tan A, Moine S, et al. Primary palliative care needs urgent attention. BMJ 2019; 365: l1827 (doi: 10.1136/BMJ.L1827)

Pettus K, Moine S, Kunirova G, et al. Palliative Care Comes of Age in the 2018 Declaration of Astana. J Palliat Med 2019; 22: 242–242 (doi: 10.1089/jpm.2018.0615)

Open meetings

EAPC Berlin, 2019 

  • Dr Sebastien Moine and Emeritus Professor Scott Murray (Co-Chairs) view slides
  • Professor Julia Downing (Invited Speaker) view slides
  • Dr Alan Barnard (Invited Speaker) view slides
  • Dr Bert Leysen (Invited Speaker) view slides
  • Dr Maurizio Cancian (Invited Speaker) view slides
 
Resources

English Version

Other Languages 

EAPC Infographic (2019)

Why do some care home residents die in hospital? Exploring factors processes and experiences G Alcorn, J Hockley, S Murray Primary Palliative Care Research Group, University of Edinburgh

EAPC Toolkit (2019)

 

Toolkit for the development of palliative care in primary care

EAPC Toolkit 2019 Video

EAPC Report (2015)

Promoting palliative care in the community- producing a toolkit to improve and develop primary palliative care in different countries internationally

Original article (Palliative Medicine, 2015)

Promoting palliative care in the community: Production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care view here

EAPC Toolkit (2014)

Toolkit for the development of palliative care in the community

French translation

German translation

Italian translation

 

Video for health and care professionals

(webpage)

Strictly come dying

Video for health and care professionals 

(webpage)

Early palliative care. Different for people with different conditions.

French version 

Italian version 

Portugeuse version 

Spanish version 

Video for the public, patients and family carers (Individual format)
(web page)

How to live and die well (Individual format).

“To boldly go” (blog in the BMJ)

Dutch version

Video for the public, patients and family carers (Group format)
(web page)

How to live and die well (Group format).

Chairs

Professor Scott A. Murray

University of Edinburgh, Scotland

to contact by email please click here

Twitter: @scottamurrayed

 

 

Dr Sebastian Moine

Université Paris 13 Nord, Bobigny

to contact by email please click here

Twitter: @s_moine

 

Coordinators

 

 

Dr Yvonne Engels

Radboud University Medical Centre, Radboudumc

to contact by email please click here

Twitter: @y_engels

 

 

Deirdre Shanagher

Irish Hospice Foundation

to contact by email please click here

 

Executive Committee:

Professor Julia Downing

Dr Steffen Eychmueller

 Dr Jordi Amblas

Dr Kirsty Boyd

Dr Yasemin Kılıc

Dr Alan Barnard

Dr Maurizio Cancian

Dr Sebastian Moine - EAPC Board link