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The EAPC Paediatric Taskforce

The EAPC Paediatric Taskforce is a small core group that aims to drive developments for professionals and organisations working in children and young people’s palliative care across Europe. The EAPC is well-established as a strong organisation that brings together palliative care providers across Europe.  The children’s palliative care task force now wishes to promote the development of accessible and high quality children’s palliative care through the EAPC. 

The EAPC/Maruzza Foundation mapping report (2014) highlighted the growing number of children’s palliative care professionals and services across Europe. It is therefore timely to now set up a new Taskforce to bring together all those working to develop and sustain children’s palliative care services, to share learning, to develop and share research and lay a strong evidence base for this small but highly specialised area of care. In particular support is needed for countries in Europe where children’s palliative care is still struggling to get a foothold and in countries where there is only isolated provision, to ensure that it continues to flourish. 

It aims to ensure that palliative care for children and young people has stronger representation within EAPC so that the EAPC can provide one voice across Europe for palliative care across the lifespan. The Taskforce will work on initial identified priorities and develop a network of professionals from across the paediatric sector. It will in future draw on this broad network to set up working groups to take forward any new identified priorities.   

Aims & objectives

1. To bring together the wide range of professionals working to develop children’s palliative care in European countries and provide opportunities for sharing of information, research, education and advocacy.  

2. To support the development and dissemination of the evidence base in children’s palliative care through identification of specific work streams leading to published guidelines and standards.

3. To provide educational opportunities for those working in children’s palliative care through the development of paediatric sessions at EAPC events.

4.  To support the development of palliative care for children and young people across Europe, through advocacy and awareness-raising, signposting organisations to the support offered by the International Children’s Palliative Care Network, the guidelines and standards developed by the Paediatric Taskforce and other useful resources.

 

Members of the Paediatric Taskforce

  • Dr Franca Benini, Director of Paediatric Palliative Care - Pain Service, University of Padua
  • Lizzie Chambers, Development Director, Together for Short Lives Dr Finella Craig, Consultant in Paediatric Palliative Medicine, The Louis Dundas Centre, Great Ormond Street Hospital for Children NHS Foundation Trust
  • Dr Julia Downing, Director of Education and Research, International Children’s Palliative Care Network (ICPCN)
  • Meggi Schuiling-Otten, Director, Stichting Pal

To join the EAPC Paediatric Network please email EAPC@togetherforshortlives.org.uk

Current Projects of the EAPC Paediatric Taskforce

  1. Development of a network of professionals working in paediatric palliative care

Method:  Taskforce to actively seek, through existing EAPC membership and external contacts, to engage professionals working in children’s palliative care.  

Outcome: A large network of appropriate professionals from across Europe that will

       a. Strengthen paediatric representation within the EAPC

       b. Be involved in future working parties for specific pieces of work

Time schedule: Initial network is established and this is now an ongoing piece of work.

  1. Input to the review of the IMPaCCT Standards being led by the Maruzza Foundation

Method: The Taskforce will contribute to the revision of the IMPaCCT standards that were published in 2007.   The work is being led by the Maruzza Foundation and will draw on the revised definitions and categories of life-limiting condition that are being developed as part of the revision of the Together for Short Lives Guide to the Development of Children’s Palliative Care Services.

Outcome: A publication that sets out standards for children’s palliative care across Europe and clear definition and categories of condition that might require children’s palliative care support.

Time schedule: September – December 2017

  1. Development of a directory of children’s palliative care services across Europe

Method: The Taskforce will develop a methodology for collecting and collating information about services, carry out the data collection and put collated information in to an easily accessible online service directory to be hosted on the EAPC website.  The Taskforce will use its existing contacts and networks and those collected from (1) above to ensure that this Directory is as comprehensive as possible.

Outcome: An online Directory of Children’s Palliative Care Services in Europe

Time schedule: September 2017 – February 2018

 

Chairs

Lizzie Chambers

Together for Short Lives
United Kingdom

to contact by email please click here

Finella Craig

Great Ormond Street Children's Hospital
United Kingdom

to contact by email please click here

Steering committee

Lizzie Chambers (UK)

Finella Craig (UK)

Julia Downing

Franca Benini (IT)

Meggi Schuiling-Otten

Members


Lizzie Chambers, Development Director, Together for Short Lives, UK

Dr Finella Craig, Consultant in Paediatric Palliative Medicine, The Louis Dundas Centre, Great Ormond Street Hospital for Children, UK

Dr Julia Downing, Chief Executive, International Children’s Palliative Care Network (ICPCN), UK/Serbia

Ana Lacerda, Children’s Palliative Care Advocate, Portugal

Silvia Lefebvre, Director, The Maruzza Foundation, Italy

Mette Raunkiaer, Senior Researcher, Centre for Rehabilitation and Palliation, Denmark

Meggi Schuiling-Otten, Director, Stichting Pal, the Netherlands

 

 


 

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