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EAPC RN in Lisbon

(02.06.2011) 18-21 May we joined the EAPC Congress in Lisbon, Portugal.

The Research Network shared a stand with the European Palliative Care Research Centre (PRC), the Junior Forum and the EAPC Research Congress 2012. During the congress we got to meet a lot of fantastic people from all over the world, both experienced researchers and up-and-coming ones.

We would like to thank everyone who come to visit our stand. We sincerely hope that we were able to answer all of your questions, and that you got to know the future plans for the Research Network a little bit better.

The EAPC basic dataset delphi process

(08.03.2011) This is a multi-centre study involving 67 experts from 29 countries. The Delphi process will consist of six rounds and be completed by June 30, 2011.

One of the barriers identified in palliative care research is the lack of common criteria to describe a palliative care population. This in turn limits the possibility to generalise findings from clinical studies. To overcome this limitation, the European Palliative Care Research Centre (PRC) in Trondheim, in collaboration with the EAPC Research Network and the PRISMA project, have started the work towards a consensus-based, standardised description of a palliative care population.

If you have any questions about the study or want additional information, please contact the researcher coordinating the study.

EPCRC guidelines are ready

(25.01.11) The European Palliative Care Research Collaborative (EPCRC) are in the process of publishing clinical guidelines for treatment of pain, and management of cachexia and depression.

The guidelines for depression have already been published online by the European Journal of Cancer, while those for cachexia only will be published on the EPCRC website. The pain guidelines will be published later.

The depression guidelines have been developed by a Work Package team at King's College in London. The process has involved expert and public consultations in addition to literature reviews. The latter include a Cochrane review on the use of antidepressants for depression in physically ill people.

Patient friendly leaflets has been prepared in five languages, and these will be published along with the guidelines.

Palliative care gains ground in developing countries

news article in the Journal of the National Cancer Institute (JNCI) by Kristine Crane (Vol. 102, Issue 21) outlines the efforts of several organizations to improve palliative care development and opioid availability around the world.

The developing countries have about half of the world’s cancer diagnoses each year. Most of these cases are diagnosed at late stages due to poor access to diagnostic services and health care in general. This situation has created an imminent need for palliative care, and palliative care is often used as a first step in building up a cancer care programme. The article presents examples from many parts of the world, with a special focus on Vietnam. Fighting opiophobia is an inherent and crucial part of promoting palliative care in developing countries, but access to other drugs such as antidepressants is also important. The article concludes that how palliative care is accepted in a society depends very much on how it is introduced ─ not just as end-of-life care, but as a way to have a better life and in many cases even a help to live longer.

WHO designates new collaborative centre within palliative care

The Institute of Palliative Medicine (IPM) was in November designated as a WHO Collaborating Center(WHOCC) in Palliative Care. IPM is now the fifth WHOCC in Palliative Care in the World and the first among developing countries.

The new centre is located at the Kerala Medical College in India. It ‘s activity concerns patients with non-communicable diseases, cancer and HIV/AIDS and will mainly focus on: a) Contribution to the development of the WHO primary health care package( PHC) for non communicable diseases (NCDs) especially in the area of palliative care in low resource settings through development of guidelines, protocols and standards for home based care in palliative care and long term care, b) Providing technical assistance for the development of community-based palliative care programmes in at least three other states in India and at least two neighbouring countries, c) Development of education and training courses and material for the above thematic areas for health care workers and leaders, particularly at the PHC and community levels that can be adapted to other similar settings within India and beyond, and d) Development of education and training programs for doctors and nurses in palliative care and long term care.

Contact information: Dr. Suresh Kumar (drsuresh.kumar@gmail.com) or www.instituteofpalliativemedicine.org.

Open meeting about the EAPC RN / PRC in Glasgow

(13.07.2010) The EAPC Research Network and European Palliative Care Research Centre (PRC) were on the agenda for an open meeting on the first day of the 6th Research Congress of the EAPC in Glasgow200 persons were presented with status on ongoing and future research projects, chaired by Dr Franco de Conno and Professor Geoffrey Hanks.

Professor Stein Kaasa, chair of the EAPC RN and director of the PRC opened the meeting with an insight into the current strategy of EAPC RN, a research network for all palliative care research, and the PRC which mainly has a biomedical focus on cancer palliative care.

For more information about ongoing studies, please visit the websites: PRC and EAPC RN.

The 6th EAPC Research Congress 10-12 June 2010

The 6th Research Congress of the EAPC was held in Glasgow and broke several records for the highest number of submitted abstracts (663) and the highest number of participants (1406) from 39 countries. In all it was a great success and this congress secured the EAPC Research Congress as the premier international research meeting for palliative care.

The programme reflected the broad range of research in palliative care and also focused attention on a number of large European research initiatives including several multicentre studies and the recently formed Palliative Care Research Centre (PRC) in Trondheim, Norway. The PRC is now the centre-piece of the EAPC Research Network and it will further stimulate ambitious clinical research projects across Europe over the next years. The 7th EAPC Research Congress is scheduled for June 2012 in Trondheim, Norway.

Congress evaluation: http://www.eapcnet.eu/Corporate/Events/Researchpastcongresses/2010Glasgowreport.aspx

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