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EAPC Primary Care Reference Group

Summary:

Palliative care still only reaches a minority of potential beneficiaries and is often introduced too late to prevent much distress. People with multi-morbidities and non-malignant conditions, frailty and dementia are still less likely to receive any form of palliative care than those with cancer. To gain universal coverage, a coordinated primary care and public health approach is necessary. Our vision is that palliative care is fully integrated in primary care systems internationally so that all patients have early access to a palliative care approach in the community (in their own home and in residential care facilities).

Rationale:

Palliative care still only reaches a minority of people who could benefit from a holistic approach to care as their health declines, and is often not introduced until the terminal stage of their illness. People with multi-morbidities and non-malignant conditions, frailty and dementia are still less likely to receive any form of palliative care than those with cancer. To gain universal coverage, a coordinated primary care and public health approach is necessary 

Aims & Objectives:

  1. Promote integration of primary care as an essential element of national palliative care frameworks, and palliative care as an essential element of national primary care frameworks. 
  1. Foster training and educational development in timely palliative care for all primary care health professionals, at both undergraduate and graduate levels. 
  1. Advocate that primary care practitioners providing palliative care have adequate resources and professional support to encourage safe and effective practice, and to promote health equity for people with life-threatening illnesses. 
  1. Provide collegiate support to primary care practitioners as they develop evidence- based approaches to high quality primary palliative care. 
  1. Support and develop research opportunities in primary palliative care – across EU countries. 
  1. Identify mechanisms to support primary palliative care in all countries, with a specific focus on lower and middle income countries. 

How can I contribute?

If you are passionate about improving palliative care in the community in your country, please contact  our co-ordinator marie.lynch@hospicefoundation.ie to register as a member of the wider group. 

We are also specifically looking for national representatives from every country in Europe, and currently lack these in the following countries: Albania, Andorra, Austria, Azerbaijan, Belarus, Bulgaria, Czech Republic, Estonia, Georgia, Greece, Latvia, Moldova, Montenegro, Russia, Serbia, Slovakia, Ukraine.

If you are willing to consider taking on this role please contact Sebastien Moine.

Workplan

Year 1 - 2017

  • Encourage and support Palliative Care and Primary Care leaders in Europe
  • Identify core competencies in education and training for primary care professionals
  • Promote activities/sessions on primary palliative care in all EAPC sponsored conferences and primary care conferences
  • Participate in the WHO Technical Advisory Group (TAG) to input into manuals to help operationalise palliative care in the community. 

Year 2 - 2018

  • In European countries not involved in the previous Taskforce, identify and support one or more key professional leaders to scope the barriers/facilitators
  • Produce an updated/ expanded toolkit to enhance 1) timely identification, 2) assessment, 3) care planning, 4) evaluation in primary care
  • Start international, collaborative small-scale research and student exchange projects including publication of reviews of European developments 

Year 3 - 2019

  • Continue identification of and partnership with primary palliative care champions throughout Europe
  • Develop collaboration with organisations and countries outside Europe to help develop primary palliative care

Year 4 - 2020

  • Publish a white paper on promoting primary palliative care in all countries
  • Submission of an EU research or quality improvement proposal. 

 

Members of Reference Group:

Chairs: Professor Scott A Murray & Dr Sebastien Moine

Coordinators: Ms Marie Lynch & Dr Yvonne Engels, 

Members: Prof Geoff Mitchell, Professor Julia Downing, Dr Steffen Eychmueller, Dr Xavier Gomez-Batiste, Dr Jordi Amblas, Dr Kirsty Boyd, Prof Nils Schneider.

7. Evidence-based videos explaining the reasons for early palliative care, based on BMJ Analysis: Palliative care from diagnosis to death (2017)

 

 

English Version   Other languages

Video for health and care professionals

(web page)

Early palliative care. Different for people with different conditions.

 

French version

Italian version

Portuguese version

Spanish version

Video for the public, patients and family carers (Individual format)
(web page)

How to live and die well (Individual format).

“To boldly go” (blog in the BMJ)

   

Dutch version

Video for the public, patients and family carers (Group format)
(web page)

How to live and die well (Group format).    

 

 

 

Chairs:

Professor Scott A. Murray

University of Edinburgh, Scotland

to contact by email please click here

Twitter: @scottamurrayed

Dr Sebastian Moine

Université Paris 13 Nord, Bobigny

to contact by email please click here

Twitter: @s_moine

Coordinators:

Ms Marie Lynch

The Irish Hospice Foundation, Dublin

to contact by email please click here 

Twitter: @marie7732

Dr Yvonne Engels

Radboud University Medical Centre, Radboudumc

to contact by email please click here

Twitter: @y_engels

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