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Task Force on Palliative Care in Africa: Fostering collaboration and partnership

The task force has been approved October 2011. It  will explore opportunities that will foster collaboration and partnerships that will increase European-Africa engagement to enhance the development of palliative care on the African continent.

Background

APCA is the regional voice for palliative care, speaking for the whole of Africa, and has a strategic vision to ensure access to palliative care for all on the continent. Given less than effective health delivery systems, and based around the World Health Organisation’s fundamental building blocks of a generic health system, strengthening health systems to ensure the public health delivery of palliative care underpins APCA’s strategic direction. In achieving this goal, APCA’s work is propelled by four strategic drivers:

  • Strategic driver 1: Increasing knowledge and awareness of palliative care among all stakeholders;
  • Strategic driver 2: Strengthening health systems by integrating palliative care at all levels;
  • Strategic driver 3: Building the evidence base for palliative care in Africa, and;
  • Strategic driver 4: Ensuring the economic sustainability of APCA.

The need to develop a palliative care task force is underpinned by the close alignment of APCA’s and the EAPC’s objectives of supporting the development of palliative care along the lines of the above drivers. Indeed, there a long and history of productive collaboration between palliative care specialists in Europe and Africa. This has included clinical work, education and advocacy, as well as research. However, there is ongoing concern about the imbalance of this collaboration, given the scale of resources that originates from, and the longer palliative care history of, European partners. Fostering the collaboration between services and institutions may provide mutual benefits. Indeed, a closer, more equitable collaboration between APCA and the EAPC should be beneficial to both regional associations: APCA could benefit from European experiences, such as the establishment of task forces or its vibrant research network, whereas the EAPC will find African experiences of the public health approach to palliative care, with AIDS and tuberculosis, of genuine interest.

Funding opportunities for this kind of collaboration have traditionally been scarce; though, in all likelihood, potential major funding sources have not been optimally targeted to date to support palliative care projects.

APCA and the EAPC have collaborated successfully in the past, with speakers from both continents regularly included in the major congresses of each association. The proposed members of the task force’s steering committee have been fundamental to this collaboration, combining research skills with clinical or social scientific experience.

Potential founding members of the proposed task force met at the EAPC congress held in Lisbon, Portugal, in May 2011 to discuss options for increased collaboration, and have agreed to contribute to the task force on the assumption that they will fulfil the membership criteria, which will be based around APCA’s partnership framework.

Objective

  1. Deepening and extending the collaboration between the European Association for Palliative Care (EAPC) and the African Palliative Care Association (APCA), as well as with constituent members of both associations.
  2. Providing a platform for collaboration with European and African partners working in palliative care.
  3. Plan and perform a pilot study using the collaboration of European and African partners.

Method

The task force will use email discussions, Skype calls and face-to-face meetings linked to major congresses and other international conferences as methods of work. The group will plan and develop two basic papers:
a) a memorandum of understanding outlining the rules for collaboration in clinical work, education and advocacy, and research that will be used as bylaws of the task force, but also used as a checklist by other European or African services or institutions interested in a partnership; and
b) an agenda for bilateral cooperation between APCA and the EAPC. These papers should be finalized and presented to the boards of APCA and EAPC by October 2012.

The task force will also provide advice on the development of the African Palliative Care Research Network, which was recently initiated by APCA. This includes advice on the recruitment of centres willing, and able, to contribute to the development of palliative care research on the continent, as well as advice on organisational issues and planned study proposals.

More specifically, the task force will develop a study proposal for a pilot project, selecting a relevant research question with an appropriate and feasible methodology, and undertake that study. The pilot study plan will be developed by June 2012, the study performed and evaluated by June 2013. Results will be presented at the EAPC Prague Congress in 2013.

 

Chairs

Lukas Radbruch
Malteser Krankenhaus Bonn
Zentrum für Palliativmedizin, Germany

to contact by email please click here

Richard A. Powell
M&E and Research Manager
African Palliative Care Association, Uganda

to contact by email please click here

Steering committee

Dr Liz Gwyther
South Africa

Dr Richard Harding
UK

Dr Faith Mwangi-Powell
Kenya

Megan O’Brien
USA

Fatia Kiyange
Uganda

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