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The international collaborative project to evaluate the availability and accessibility of opioids for the management of cancer pain in 4 regions: Africa, Asia, Latin America and Middle East

Background

The under-treatment of cancer pain has been identified as a major international public health crisis. This is particularly so in many of the developing economies of the world and in many parts of the under developed world. Despite efforts by many international organizations to address this problem, and some limited successes in isolated countries, in the big picture relatively little headway has been made.

Public health initiatives to address this problem are required but on a global and local scale. To be effective, public health initiatives must have a valid and reliable data as to what are the factors contributing to this health care dilemma. To date, collection of this data has been sporadic and not systematic. This lack of specific information may be one of the factors that have hampered progress to date.

All of the partners understand the value of this study as the only international one with data of this kind. The data will have major health implications for cancer patients around the world.

The partners see themselves as having and international mission and commitment to improving the fate of cancer patients with pain. Many partner organizations have a proven track record of data collection from the diverse geographic locations, data verification and collation, and report presentation. The partner organizations have experience in teaming with other potential collaborative partners in projects of this kind. This is the largest international collaboration program led by ESMO in any field and underscores the society’s commitment to supportive and palliative care on a global level as one of its major interests in an international setting.We see this as a project of major international significance that will both garner necessary data and mobilize a wide range of important collaborative partners to help address the issue of identifying and rectifying barriers to the availability of medication for the management of cancer pain in the developing world.

Project goals

The goal of this high profile project is to obtain reliable data regarding the availability and barriers to accessibility of opioids to cancer patients in Africa, Asia, the Middle East, Latin America. A survey questionnaire will benchmark current standards against international standards set by WHO / International Narcotics Board, which implement and control UN drug conventions. The survey results will provide a critical resource for local, regional and international bodies addressing this vital human rights and public health issue of a person’s right to effective pain management.

It is hoped that the clear elucidation of barriers to accessibility will facilitate effective lobbying and policy development to address the necessary regulatory reform required to improve the availability and accessibility of opioids for the management of severe cancer pain.

Aims & objectives

1. To evaluate the formal availability and cost to the consumer of the range of opioid drugs used in the management of cancer

2. To evaluate the regulatory barriers to the accessibility of opioid drugs for patients with cancer pain in each participating country

Results, outcomes

The survey results will be submitted first to Annals of Oncology for publication. Presentations about the survey and its results will be given at the EAPC Research Congress in Trondheim 2012, at the ESMO Congress 2012 and the EAPC Congress 2013. 

All partners will be invited to peer review individual country reports, which they will be encouraged to present at international, regional and national meetings and to publish in local scientific journals.

The publication in Annals of Oncology, the regional and individual country reports, and the session at the  Congresses are the main deliverables in this project.

 

Project leader

Nathan Cherny
Chair ESMO Palliative Care Working Group
Jerusalem, Israel

Adamos Adamou
Chair ESMO Developing Countries Task Force

Coordinating partners

European Society for Medical Oncology (ESMO)

European Association Palliative Care (EAPC)

International Program at the Pain and Policies Studies Group,
University of Wisconsin Carbone Cancer Center

International Union Against Cancer (UICC)

World Health Organization (WHO)

Collaborating partners

Regional oncology societies: AORTIC, JSMO, CSCO, MOGA, SLACOM, AMAAC

Asia Pacific Hospice Palliative Care Network

African Palliative Care Association (APCA)

Middle East Cancer Consortium

International Association of Hospice and Palliative Care (IAHPC)

Latin American Association for Palliative Care (ALCP)

Multinational Association for Supportive Care in Cancer (MASCC)

Indian Palliative Care Group

Open Society Foundation (OSF)

World Palliative Care Alliance (WPCA)

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