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EAPC Task Force on the Development of Palliative Care in Europe

Background

Over the last decade, Europe has grown to become a unified community that strengthens economic cooperation, political harmony and cultural exchange.

As a consequence of, and in response to this societal phenomenon, the European Association for Palliative Care (EAPC) has included under its organizational umbrella an increasing number of national and regional palliative care associations, and it has represented many more individual members from different countries over the years.

The gaining of knowledge and understanding of the development of programmes to promote end of life and palliative care, and more effective pain relief across Europe has become increasingly valuable to governments and policy makers committed to improving national or regional health care systems.

An opportunity to share information and experience with other colleagues is encouraging to European health professionals interested in appropriately approaching end of life care matters in an ever more culturally diverse working environment.

Reliable information on the development and provision of palliative care across Europe, however, remains scattered. For this reason, in June 2003, the EAPC Board agreed to the creation of an official Task Force to research palliative care developments in the European region including all the countries that make up the World Health Organization (WHO) European Region, a total of 52 countries at that time.

To read more about this task force click here

Aims and Objectives

This Task Force aims were to explore, assess and comprehensively summarize the current state of the development of palliative care in the European region.

The main objectives were:

  1. To provide reliable information on the delivery of hospice and palliative care in Europe in a manner relevant to the EAPC; to intergovernmental organisations and to national and regional governments
  2. To explore the current organisation of hospice and palliative care in Europe considering political and social issues; healthcare policies, and the availability of palliative care resources countrywide
  3. To facilitate access to information and communication between hospice and palliative care associations and societies that operate across Europe
  4. To aid the identification of key persons who have studied the development of hospice and palliative care in their own settings and who may provide country specific data to assist policy makers, planners and professional associations.

Results, outcome, narrative report

The task force has reached its goals with the following publications:
  • a country by country report of the 52 participating countries. Each country report comprises a summary of the literature in palliative care available in the country, bibliographic information, comments from the “boards” of national associations (or equivalent palliative care organizations), or from the “expert informants” from those countries in which national palliative care associations (or equivalent organizations) do not exist, and a summary of the data collected by the country’s ‘key collaborator’

  •  a comprehensive analysis of the development of palliative care in the European region

  • an atlas of palliative care developments in the European region


Click here to view and download all documents

All participating “key collaborators”, “boards” and “expert informants” have remained as possible “contacts for information” about palliative care in their countries for future researches on the nationwide span of the discipline.


The dissemination of the final results were achieved  in several ways, including publications in palliative care journals; conferences proceedings; presentations and web-sites. The participating organizations as well as “boards”, “expert informants” and “key collaborators” in each studied country have been acknowledged as contributors to the project in all written or on-line publication.

Partners

Under the formal auspices of the European Association for Palliative Care (EAPC), four organizations contribute to this project:

  • the EAPC Onlus
  • the International Observatory on End of Life Care (IOELC) 
  • Help the Hospices (HH) 
  • the International Association for Hospice and Palliative Care (IAHPC)
These participating organizations play a key role in disseminating the project’s findings. Written agreement on the details of their collaboration has been obtained.

Funding was secured through a joint effort of Mundipharma Europe, the EAPC, the IAHPC and HH.

 

Chair


Carlos Centeno
Clínica Universitaria de Navarra
Equipo de Medicina Paliativa 
Pamplona, Spain
Click here to contact by email

Members

Simon Branch
Database and Website Manager, Help the Hospices, London, UK.

David Clark
Sociologist, University of Glasgow, Dumfries Campus, Dumfries, UK.

Liliana de Lima
Psychologist, Executive Director, International Association of Hospice and Pallative Care (IAHPC), Houston, USA.

Luis Alberto Flores 
Nurse, Editor of Spanish Directory of Services of Palliative Care, Valladolid, Spain.

Amelia Giordano
Pharmacist, Deputy Officer, Head Office of the European Associations for Palliative Care, Milan, Italy.

Anthony Greenwood
Information Officer, International Observatory on End of Life Care, Lancaster University, Lancaster, UK.

David Praill
Chief Executive, Help the Hospices, London, UK.

Javier Rocafort
Physician, Director, Hospital Centro de Cuidados Laguna, Madrid, Spain.

Lynch Tomas
Postgraduate Student, Freelance Researcher, International Observatory on End of Life Care, Lancaster University, Lancaster, UK

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