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EAPC survey on spiritual care research priorities

The EAPC Spiritual Care Taskforce recently conducted an online survey of palliative care practitioners’ and researchers’ priorities for spiritual care research. Over 900 people from more than 70 countries participated – a fantastic response. Many thanks if you took the time to complete the survey.

Preliminary results were presented at the EAPC research congress in Trondheim (for the abstract, see Palliative Medicine 2012; 26:4). The complete dataset is currently being analysed and a summary will be available online later in 2012.

Lucy Selman, King’s College London, and Teresa Young, Lynda Jackson Macmillan Centre
On behalf of the EAPC Spiritual Care Taskforce

EAPC taskforce on Spiritual Care in Palliative Care

Summary

The WHO definition of palliative care includes taking care of the spiritual (care) needs of patients. It is essential that the spiritual (care) needs of patients, family and carers in all settings are adequately met. These is much discussion about the definition of spirituality. Based on the 2009 Consensus Conference in the US, at the invited conference in October 2010 this taskforce has agreed upon the following working definition and comment:

Spirituality is the dynamic dimension of human life that relates to the way persons (individual and community) experience, express and/or seek meaning, purpose and transcendence, and the way they connect to the moment, to self, to others, to nature, to the significant and/or the sacred.

The spiritual field is multidimensional:

  1. Existential challenges (e.g. questions concerning identity, meaning, suffering and death, guilt and shame, reconciliation and forgiveness, freedom and responsibility, hope and despair, love and joy).
  2. Value based considerations and attitudes (what is most important for each person, such as relations to oneself, family, friends, work, things nature, art and culture, ethics and morals, and life itself).
  3. Religious considerations and foundations (faith, beliefs and practices, the relationship with God or the ultimate).

Aims & objectives

The mission of the Taskforce is to encourage all members of the EAPC to support spiritual care in palliative care through:

  1. Recognition
  2. Research
  3. Education
  4. Implementation
  5. Funding/resources
Short term aims and objectives: 2011-2013
1.      Recognition
-           To promote representation of the SC dimension in the EAPC board
-           To write articles about SC and aim to have these accepted in leading journals
-           To encourage regional and national meetings on spiritual care in palliative care (SCPC)
-           To bring healthcare workers physicians, nurses, social workers, etc.) and faith leaders/chaplains/spiritual workers in contact within programs to build mutual understanding on the role of each other in SCPC
-           To activate national forums for chaplains and clergy on multidisciplinary SCPC
-           To promote awareness of the spiritual needs in the medical and religious worlds.
2.     Research
-           To translate guidelines, standards and educational programs on SCPC in English;
-           To promote a research workshop at EAPC congress, on methodology
-           To make an inventory on existing research on SCPC in EU
-           To build a European network of researchers in SCPC and interest universities in SC topics identified by the TF
-           To promote research as a part of the ‘normal’ work of the chaplain
-           To collect SCPC narratives of different EU backgrounds to be available for teaching and research on EAPC-SCPC website
-           To identify research questions SCPC
-           To reframe research questions to include SC (from bio-psycho-social frame to bio-psycho-social-spiritual frame)
3.       Education
-           To contribute to the quality of the spirituality program on EAPC congresses
-           To make accessible and exchange successful training programs
-           To develop core content in teaching spirituality to non chaplaincy-professionals
¨     definition issues; basic understanding of SCPC (professional)
¨     spiritual needs, assessment tools,
¨     spiritual needs and resources of carers
¨     spiritual culture in teams
-           To promote spiritual issues as a mandatory element of all disciplines
-           To preparation of training materials based on Marie Curie spiritual care competencies across 4 levels of NICE
4.      Implementation
-           To collect examples of good practice and learn about them (for example: I and death groups, Murphy groups, Public Health campaign ‘Dying Matters’)
-           To write and publish a EU manifest to promote having a spiritual caregiver in multidisciplinary pc teams
-           To make an inventory on standards on SCPC
5.     Funding/resources
-           To make a further inventory of possible funding and resources and connect with relevant organisations.

Milestones

2010 April: The Taskforce was established

2010 October 15-17: Invited conference The Netherlands, to set Aims and Objectives

2010 October to 2011 May : further preparatory work

2011 May 18-22:  EAPC Conference Lisbon, Portugal, Final set-up of the Taskforce

2013 May/June EAPC Conference, Prague, Czech Republic: presentation of the outcomes

 

Chairs



Carlo Leget, University of Humanistic Studies, Utrecht, The Netherlands

to contact by email please click here

 
Joep van de Geer, Spiritual Care, Medical Centre Leeuwarden, The Netherlands

to contact by email please click here

Members

Research
Lucy Selman,
co-coordinator (UK)
Ian Stirling,
co-coordinator (UK)
Hanne Bess Boelsbjerg (DK)
Christian Busch (DK)
Katrien Cornette (BE)
Birgit Holritz-Rasmussen (S)
Sigrid Helene
Kjørven Haug (N)
Urska Lunder (Slov)
Tamari Rukhadze (Georg)
Peter Speck (UK)
Mieke Vermandere (BE)
Urs Winter-Pfändler (Swi)
Teresa Young (UK)

Education
Traugott Roser,
co-coordinator (D)
Andrew Goodhead,
co-coordinator (UK)
Catherine Baldry (UK)
Benito Enric (Spain)
Karen Groves (UK)
Anne Hirsch (N)
Steve Nolan (UK)
Ingebrigt Røen (N)
Philip Saltmarsh (UK)
Sandra Schaap (NL)
Tanja Stiehl (D)
Etje Verhagen (NL)
Ruurd van de Water (NL)

Implementation
Laura Campanello,
co-coordinator (It)
Cinzia Martini,
co-coordinator (It)
Maria Teresa Garçia-
Baquero Merino (Spain)
Joep van de Geer (NL)
Piotr Krakowiak (P)
Carlo Leget (NL)
Bella Vivat (UK)
Marijke Wulp (NL)

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