Report, 2011
The CEE Newsletter was developed in 2005 by the Hungarian Hospice-Palliative Association, with the support of the Open Society Foundations and the European Association for Palliative Care. The aim of the Newsletter was to promote the development of palliative care in Eastern European countries, continuing the EAPC East activity. In 2005 the Newsletter became one of the taskforces of the European Association for Palliative Care. From February 2005 to August 2011 we published 79 issues in English and in Russian languages.
Project summary
1. Design
In 2009 the Newsletter has been renewed with the aim to give a fresh look to the webpage. The new ergonomic arrangements are: large image for orientation, table of contents, useful links at relevant locations, clear icons for columns, up-to-date web design, flexible for any content. A Search function was inserted in the Archive part of the Newsletter.
Pictograms make orientation easier for users, showing the content of the Newsletter: country reports, model programs and national initiatives, policy, education and training opportunities, research and palliative management, grants, congresses and events, permanent columns.
2. Results
The Newsletter introduced detailed country reports from 15 countries (Ukraine, Romania, Lithuania, Hungary, Mongolia, Slovenia, Poland, Serbia, Macedonia, Croatia, Bulgaria, Albania, Czech Republic, Moldova, Belarus). These reports provided the recent views on the Eastern European and Former Soviet Union situation in palliative care all over the world. Many model-programs of a region or city and important international and national congresses, events and declarations were published. All grant opportunities were reported for Eastern-Europeans. Two permanent columns, the Further links and Standards are available, collecting 54 useful links and 21 standards in Palliative care.
According to our new initiative we undertake the task of searching for national and regional websites in the Eastern-European region that report on a regular basis and provide information on various proposals and results. By collecting these websites and highlighting the most important events we aim to develop and strengthen national and regional connections.
Statistical summary
1. Partners from countries (2011)
2. Number of recipiens in English and in Russian (2009-2011)
| Date |
English |
Russian |
Sum |
| August, 2009 |
629 |
75 |
704 |
| September, 2009 |
1301 |
105 |
1406 |
| November, 2009 |
629 |
75 |
704 |
| December, 2009 |
625 |
92 |
717 |
| January, 2010 |
644 |
65 |
709 |
| February, 2010 |
627 |
85 |
712 |
| March, 2010 |
1299 |
117 |
1416 |
| May, 2010 |
735 |
83 |
818 |
| June, 2010 |
1485 |
116 |
1601 |
| July, 2010 |
1382 |
144 |
1526 |
| August, 2010 |
697 |
63 |
760 |
| October, 2010 |
1340 |
163 |
1503 |
| December, 2010 |
1339 |
153 |
1492 |
| February, 2011 |
671 |
67 |
738 |
| March, 2011 |
646 |
90 |
736 |
| April, 2011 |
1310 |
166 |
1476 |
| May, 2011 |
646 |
95 |
741 |
| July, 2011 |
674 |
71 |
745 |
| August, 2011 |
677 |
63 |
740 |
Future aims
We are participating in the NEED_IT (Information Needs assessment in Central and Eastern Europe) project, founded by the Open Society Foundations. The online questionnaire survey started in September 2011. After getting the results of the survey a report will be prepared with a long term and short term strategy for the ongoing development of the Newsletter.
Members of the CEE Newsletter group
1. Dr. Katalin Hegedus PhD, Hungarian Hospice-Palliative Association, editor-in-chief
2. Dr. Ágnes Zana PhD, Hungarian Hospice-Palliative Association, editor
3. Csilla Raduch, Semmelweis University, Budapest, Hungary, English lector
4. Dr.Elena Vvedenskaya, Russia, translator
5. Katalin Munk, Hungarian Hospice Palliative Association, IT technician
Contact persons from the CEE countries
Dr Elena Vvedenskaya, Russia; Dr Daniela Mosoiu, Romania; Dr Natasa Milicevic, Serbia; Dr Avyrdas Seskevicius, Lithuania; Dr Urska Lunder, Slovenia; Dr Nikolay Yordanov and Dr Penka Kolchakova, Bulgaria; Dr Anica Jusic and Dr. Matija Rimac, Croatia; Dr Mirjana Adzic, Macedonia; Dr Albert Leka, Albania; Dr. Ondrej Slama and Eva Černá, Czech Republic; Alexander Wolf, Ukraine; Elena Stenpovscaia, Moldova; Dr Gvamichava Rema, Georgia; Professor Jacek Luczak and Wojciech Leppert, Poland etc.
Dr Katalin Hegedus
October 2011
July 2010
This monthly newsletter will cover palliative care activities in the countries of CEE & FSU in English and Russian. It is developed by the Hungarian Hospice-Palliative Association with the support of the Open Society Institute's "International Palliative Care Initiative" and the European Association for Palliative Care (EAPC).
The goal is to report and discuss the activities, diversity, challenges and progress being made in palliative care development and to foster networking as well as communication in Central and Eastern Europe and Former Soviet Union. It will further inform those throughout the world about the regional effort.
Our aim is to create an individual, high standard and creative identity for the newsletter. We would like to increase the attention to palliative care in the region using the EAPC website as background.
Topics covered:
- advocacy for palliative care
- fundraising activities
- announcements on newly received funding
- case studies on successful examples of working with the media
- activities on educating the public
- progress in palliative care policy development
- education/training opportunities in the region
- hospice and palliative care practice
- drug availability
- meetings and conference calendar
- question and answer column for difficult cases to be discussed
- twinning requests and opportunities
The ultimate goal is to contribute to the development of care of the patients and families suffering with serious life-threatening illnesses. We can not achieve our goals without your active participation.
Katalin Hegedus
Editor
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