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The following section is intended to list information about publications in palliative care that might be of interest to both patients and carer’s. It is not a comprehensive listing and the inclusion of a publication does not necessarily signify EAPC approval of its quality.
While every effort is made to ensure the accuracy and validity of all entries, the EAPC does not accept responsibility for any inaccuracies or omissions.
Grieving is different for all people of all ages.
Grieving is primarily acknowledging the loss of a beloved person but grieving is also present in many other situations.
My grieving is for a special, vibrant, loving, fun member of my family, my son. My grieving has ranged from sailing on a calm sea to being in the middle of a cyclone. Many people have helped me on my journey of grieving, and, as a result I have many resources that I would like to share.
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IASP Press has published a new book, Pain Comorbidities: Understanding and Treating the Complex Patient, by Maria Adele Giamberardino and Troels Staehelin Jensen.
An in-depth analysis of complex clinical situations involving multiple concurrent diseases, this book reviews the clinical presentation and management of interactions among medical conditions, including myofascial pain, headache, fibromyalgia, visceral pain, hypertension, diabetes, osteoarthritis, low back pain, obesity, depression, and anxiety. The authors aim to guide medical students and practicing clinicians to better understand the nature, modalities of diagnosis, and treatment of complex clinical situations involving multiple concurrent diseases and their influence on the experience of pain. This book is also recommended for general practitioners, clinical psychologists, nurses, and clinical investigators.
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Cancer Pain: From Molecules to Suffering
An in-depth analysis of basic and clinical research on cancer pain, Cancer Pain: From Molecules to Suffering describes underlying mechanisms of cancer pain and reviews opioid treatment issues, including tolerance. This comprehensive new volume discusses current drug trials and research, clinical trial designs, common reactions including inflammation and hyperalgesia, the psychology of cancer pain, and disparities in the availability of cancer care worldwide.
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Oral feeding difficulties and dilemmas
A guide to practical care, particularly towards the end of life
This book has been prepared by the Royal College of Physicians in conjunction with the British Society of Gastroenterology in response to continuing unease about the lack of consensus, including among doctors, about when artificial nutrition and hydration is appropriate.
The ultimate aim of the report is to improve care by providing healthcare professionals, patients, their families and carers with practical advice that has a sound legal and ethical basis, and to prevent distressing and complicated disagreements.
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Family Carers in Palliative Care
A guide for health and social care professionals
Edited by Peter Hudson and Sheila Payne
This book provides an evidence-based, practical guide to enable health and social care professionals to assess and respond to family carer needs. It also explores the wider sociological, policy, and research issues related to family carers and palliative care.
More information at http://www.oup.com/
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Hospice and Palliative Care Training for Physicians: UNIPAC book series
American Academy of Hospice and Palliative Medicine (AAHPM) has released the fourth edition of the Hospice and Palliative Care Training for Physicians: UNIPAC book series. The UNIPAC book series includes nine books incorporating the latest evidence in hospice and palliative care.
http://www.aahpm.org/
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The UNIPAC book series includes nine books, each focusing on a different area of hospice and palliative medicine:
U1. The Hospice and Palliative Medicine Approach to Life-Limiting Illness
U2. Alleviating Psychological and Spiritual Pain in Patients with Life-Limiting Illness
U3. Assessment and Treatment of Physical Pain Associated with Life-Limiting Illness
U4. Management of Selected Nonpain Symptoms of Life-Limiting Illness
U5. Communication and the Hospice and Palliative Medicine Physician’s Role on the Interdisciplinary Team
U6. Ethical and Legal Dimensions of Treating Life-Limiting Illness
U7. The Hospice and Palliative Medicine Approach to Caring for Patients with HIV/AIDS§
U8. The Hospice and Palliative Medicine Approach to Caring for Pediatric Patients
U9. The Hospice and Palliative Medicine Approach to Selected Chronic Illnesses: Dementia, COPD, & CHF
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Concise guidance for a good practice
A series of evidence-based guidelines for clinical management
These guidelines build on the Quality Requirements in the National Service Framework for Long-term (Neurological) Conditions (LTNCs) to explore the interaction between specialist neurology, rehabilitation and palliative care services, and how they may best work together to provide long-term support for people with LTNCs and the family members who care for them. The guidelines also provide practical advice for clinicians when caring for someone with an LTNC, as well as outlining indications for specialist referral.
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Negotiating death in contemporary health and social care
Margaret Holloway
This book brings together perspectives from social science, health-care and pastoral theology, looking at the way death is handled in contemporary society and the sensitive ethical and practical dilemmas facing nurses, social workers, doctors and chaplains.
Contents: Death in late modernity; Contemporary health and social care; Understanding death and dying; Understanding bereavement and grief; The ways in which people die; Dying in the twenty-first century; Dying and bereavement in old age; The aftermath of death; Integrating theories and practices.
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Cancer Tales: Communicating in cancer care
This book is an educational workbook aimed at healthcare professionals working in the field of oncology. It aims to provide advice, guidance and practical exercises designed to create an understanding of the impact of communication and to improve the interaction between healthcare professionals and their patients. It is based around the highly emotive play Cancer Tales, by Nell Dunn, which tells real life stories of patients with cancer and their families.
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Palliative care services
Meeting the needs of patients
This new Working Party report published by the Royal College of Physicians focuses on the philosophy of palliative care; the issues facing palliative care; oncological experience and its application to other diseases; mental health problems in palliative care and the organisation of palliative care and workforce provision.
The report will be relevant to all doctors and allied healthcare professionals and is essential reading for healthcare planners and commissioners of palliative care services.
There is increasing recognition that the principles of palliative care medicine can be implemented beneficially across most of the NHS and within most specialties. This report therefore reflects the shift in practice from predominantly cancer care to a much broader application. It includes recommendations on disseminating best practice both for those with terminal illness and for those with incurable illness earlier in the disease trajectory. Looking to the future, there is specific consideration of changing demographics, the importance of interdisciplinary care, the dissemination of care pathways, and new funding models.
Palliative care deals with an area of modern medicine that raises many ethical dilemmas, both in respect of treatment decisions and the formidable obstacles in undertaking research. For although palliative care is generally considered a ‘good thing’, it should be subject to rigorous scrutiny and justification of both process and fundamental precepts.
As end-of-life care may affect us all at some time, this report deserves a wide readership and detailed consideration of its comprehensive recommendations.
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Rethinking palliative care
A social role valorisation approach
Paul Sinclair
This book's striking message is that palliative care does not deliver on its aims to value people who are dying and make death and dying a natural part of life. Applying Social Role Valorisation, it argues for the de-institutionalisation of palliative care and recommends an alternative framework to current approaches.
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Primer of Palliative Care, 5th Edition
This introductory guide, released in March 2010, has been extensively updated and is perfect for all members of the palliative care team who care for patients with serious or life-threatening conditions in hospices and other settings. Chapters focus on pain management; dyspnea; gastrointestinal symptoms; delirium, depression and anxiety, fatigue, and spirituality; goal-setting, prognostication, and self-care; last resort options; and care during the last hours of life.
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Hospice and Palliative Care in Africa
A review of developments and challenges
Michael Wright and David Clark
As the attention of the world focused increasingly on Africa, the International Observatory on End of Life Care was commissioned to conduct a timely review of hospice and palliative care development across the continent. The Observatory undertook this review using an approach specially designed for resource poor settings. Information was collected against an agreed template to allow comparisons between countries and regions. As a result, an insight is given into the challenges, opportunities and successes faced by hospice and palliative care workers, country by country, throughout the 26 countries in Africa where a palliative care initiative is underway. Strategies and models of care are explored, and the development of palliative care is viewed from various standpoints including ethnographic, historical, ethnic, demographic and epidemiological perspectives. This is the first comprehensive reference focusing exclusively on palliative care and hospice development in Africa, and makes fascinating reading.
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Normal price £35
EAPC Bookclub price £28
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What is Professional Social Work?
Malcolm Payne
Malcolm Payne is, Psycho-social and Spiritual Care, St Christopher's Hospice, London, Emeritus Professor, Manchester Metropolitan University and Honorary Professor, Kingston University/St George's Medical School.
This book is a now classic analysis of social work as a discourse between three aspects of practice: social order, therapeutic and transformational perspectives. It enables social workers to analyse and value the role of social work in present-day multi-professional social care. This completely re-written second edition explores social work's struggle to meet its claim to achieve social progress through interpersonal practice. Important features of this new edition include:
• practical ways of analysing personal professional identity;
• understanding how social workers embody their profession in their practice with other professionals;
• detailed analysis of current and historical documents defining social work and social care analysis of values, agencies and global social work.
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Communication in Cancer Care
F. Stiefel, CHU Vaudois, Lausanne, Switzerland (Ed.)
This book covers all the relevant aspects of communication in cancer care, such as communication in cancer prevention and genetic counselling, communication at different stages of disease and communication with the family and children. In addition, more general topics are discussed, such as the benefits and evidence of communication skills training and the challenges of interdisciplinary and cross cultural communication. Besides useful information on direct clinical relevance, current theoretical frameworks and research on communication in oncology are presented. The chapters are written by leading figures in the field of psycho oncology and communication, who work and teach in different European countries.
Contents: Key elements of communication in cancer care. Motivating for cancer prevention. Communication in breast/ovarian cancer genetic counselling. Informing about diagnosis, relapse and progression of disease and communication with the terminally ill cancer patient. Maintaining hope: communication in palliative care. The patient and his family. Children with cancer. Interdisciplinary communication. Cultural aspects of communication in cancer care. Current concepts of communication skills training (CST) in oncology. CST in oncology: it works!
Comments on the scientific evidence. CST in oncology: open questions and future tasks.
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Caring for Terminally Ill Loved Ones
Lean on Me: Cancer Through a Carer's Eyes
A Book by Lorraine Kember – Inspirational True Story
a book written by Lorraine Kember, is a powerfully moving and inspirational TRUE story about her husband's courageous battle with mesothelioma (asbestos related cancer) and her emotional journey as she cares for him. This touching book includes helpful information on topics such as: Cancer pain management, symptom control, Palliative Care, Quality of Life, Coping with grief. Diary excerpts and poems Lorraine penned along the way are interspersed throughout this book and further depict the depth of their love for each other, the sense of helplessness she experienced on his diagnosis and her growing strength as she comes to realize that there is much she can do to improve the “quality of his life”. This book has been highly recommended by the Cancer Council, as well as numerous other organizations and doctors for those who have – and particularly those who care for – loved ones with cancer of all kinds.
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Conquering your child’s chronic pain
A Book by Lonnie Zeltzer and Christina Blackett Schlank
This book has been written by one of the pioneers and leading thinkers in the area of chronic pain in children. It is easy to read, and shows in a precise and scientific way , the clinical and psychological aspects of children’s chronic pain. It is written for the parents of children with chronic pain but is a very usefull tool for any healthcare worker, developping the different approaches to treatment. I highly recommend it.
Dr Chantal Wood
Unité de Traitement de la Douleur
Hôpital Robert Debré
48 Bd Serurier
75019 Paris
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