Since its inception, the EAPC has evolved into an international leader in the field of palliative care and is the principal palliative care organisation in Europe. The EAPC provides a forum for all of those either working, or with an interest in Palliative care throughout Europe and beyond. Currently the EAPC has 58 member organisations from 32 European countries and also has individual members from 48 countries globally. Members are engaged in palliative care across the lifespan from a range of perspectives: specialist and generalist clinical practice, professional groups, education, policy and research. The EAPC is respectful of the cultural and political diversity of our members and aims to speak with ‘one voice and one vision’ on matters that are important for the practice and development of palliative care.
EAPC BOARD REPORT - OCTOBER 2016
EAPC BOARD REPORT - APRIL 2015
EAPC BOARD REPORT - NOVEMBER 2014
EAPC BOARD REPORT - APRIL 2014
EAPC BOARD REPORT - OCTOBER 2013
EAPC blog: EAPC board matters, Dr David Oliver
The EAPC Board met in Milan from 25th to 26th October 2013. The venue was a hotel near to the airport, aiming to ease travel to and from the meeting and allow an intensive two days of discussion. There was the opportunity to look at the wide spread of activity of the EAPC – with Taskforces, Congresses, collaboration with other groups across Europe and increasing opportunities for advocacy and explaining palliative care to an even wider audience.
The following areas were discussed:
- The 8th EAPC World Research Congress takes place in Lleida, Spain from 5th to 7th June 2014, with a training seminar the day before. Everyone is very welcome to come and meet together in this lovely Spanish city with a wonderful climate and easy transfer by coach from Barcelona airport to the train station, for a high-speed connection.
- The 14th EAPC World Congress in Copenhagen from 7th to 10th May 2015 – the plans are progressing. Put the date in your diary!
- There is increasing use of social media with:
- Almost 66,000 views on the EAPC blog since we started in early 2012
- An average daily hit of 135
- 1,016 Facebook followers
- 584 Twitter followers (@EAPCONLUS)
- Followers are primarily from western Europe (74%), and also 6.8% from eastern Europe, 5.4% from the Americas, 1.7% from Oceania, 1.7% from the Middle East and 1% from Africa.
The EAPC Research Network is involved in several projects, including:
- A prospective study for the care of patients who have received radiotherapy for bone metastases.
- EAPC Minimum Data Set for research in palliative care.
- European Commission funded study called InSup-C investigating integrated care pathways in cancer and chronic disease.
- European Commission funded study called PACE that aims to introduce palliative care into care homes for older people using action research methods.
The Prague Charter has continued to develop – advocating for palliative care as a human right. More than 6,700 people have now signed the Charter from across the world and there are now 21 translations. During 2014, a survey of EAPC members will be undertaken to see how the Charter has been used and the changes in awareness of palliative care it has engendered. This is an ongoing project and we need your involvement – sign up now, tell your friends and colleagues, see how you can help in showing the importance of palliative care.
There is increasing collaboration with other groups, including:
- European Society of Medical Oncology – joining their palliative care group and involvement in the production of guidelines.
- European Union of Geriatric Medicine Societies and the Maruzza Foundation looking at the care of older people.
- The Maruzza Foundation is looking at palliative care for children.
- European CanCer Organisation (ECCO), helping in the formation of multidisciplinary guidelines.
- Palliative Care Network Online Congress – we're supporting this online resource.
- European partnership for action against cancer – a statement on multidisciplinary cancer care.
Although there was no real opportunity to see anything of Milan, as the meeting was intensive over the two days, we were able to sample the delights of Italian cooking and hospitality!
The EAPC welcomes comments and ideas from members – the aim is to share information across Europe and the Board is keen to receive information from members and those working in palliative care. Please use the new social media contacts and contributions are very welcome. Anyone is welcome to contact the President, Professor Sheila Payne.
EAPC BOARD REPORT - APRIL 2013
The EAPC Board of Directors met from 19th to 21st April in Munich and many decisions were made.
Collaboration with other organisations:
- Building upon the joint Manifesto on better palliative care for older people launched at the European Parliament in September 2012, a team from European Union Geriatric Medicine Society and EAPC are working collaboratively to develop research and practice. This work will be presented in October 2013 at the EUGMS conference.
- European Academy in Palliative Care (supported by the Robert Bosch Stiftung Foundation) – will be launched at the EAPC Congress in Prague under the auspices of the EAPC. The EAPC has been involved in developing this initiative and the EAPC President has been invited on to the External Advisory Committee.
There has been an impressive first 16 months since the start of the EAPC social media, with 153 posts on the Blogs with over 37,406 hits and over 100 hits every day in 2013. 76% are from Western Europe but with contacts worldwide.
Face book: http://www.facebook.com/EAPC.Onlus
The plans are proceeding well for the next EAPC congresses:
There are increasing contacts and interest within the EU, European Parliament and European Commission.
The EAPC is closely involved in two European Commission funded projects and bids have been made for another 4 projects and the decisions are awaited.
The Prague Charter will be launched at the Congress in Prague – urging governments to relieve suffering and recognise palliative care as a human right, building on the experience of the Budapest Commitments. The Charter urges governments to develop health policies addressing the needs of patients with life limiting illness, ensure access to essential medications, ensure adequate training of health care workers, ensure palliative care is integrated into healthcare systems at all levels.
It has been translated into 17 languages and the associated petition has over 3200 signatures. Everyone involved in palliative care – professionals, patients and families and the public – are urged to consider signing the petition.
The EAPC welcomes comments and ideas from members – the aim is to share information across Europe and the Board is keen to receive information from members and those working in palliative care. Please use the new social media contacts and contributions are very welcome. Anyone is welcome to contact the President Professor Sheila Payne at - firstname.lastname@example.org.
Dr David Oliver
Consultant in Palliative Medicine
Wisdom Hospice, Rochester
Centre for Professional Practice, University of Kent
EAPC Board member
EAPC BOARD MEETING - October 2012
Dr. David Olivier
Lemon groves, a sparkling sea and a full agenda were the setting for the recent EAPC board meeting in Maoiri, Italy. Dr David Oliver, Consultant in Palliative Medicine, Wisdom Hospice, Rochester, Honorary Reader, Centre for Professional Practice, University of Kent, UK, and EAPC board member explains.
Members of the EAPC Board of Directors come from a variety of professions and countries bringing our different areas of experience and expertise to the table. We meet officially twice a year and although it’s true that on this occasion we met on the beautiful and enchanting Amalfi coast our president made sure that we had a very full agenda to discuss and approve. Here are just a few of the highlights from our last meeting held in Italy from 27-28 October.
The board discussed a range of advocacy matters in which the EAPC is involved. Of particular note is the work on palliative care and older people. On 25 September the EAPC, in collaboration with the European Union Geriatric Medicine Society and the Maruzza Lefebvre Foundation, launched a Manifesto on Better Palliative Care for Older People at the European Parliament on 25 September. (You can download a copy of the manifesto, available in six languages).
Collaboration with other organisations
Work is planned for guidelines for the symptom management and care of oncology patients in collaboration with European Oncological Societies.
Launched just nine months ago, our social media activities have resulted in an impressive 104 posts on the EAPC blog, which has attracted 18,662 visits so far including some 14,000 from Europe. The blog is integrated with our Facebook and Twitter (@EAPCOnlus) pages. Following the closure in autumn 2012 of the Russian and English language ‘Central and Eastern Europe and Former Soviet Union’ newsletter it has now merged with the blog. The editor, Dr Katalin Hegedus, has joined the EAPC social media team and her experience and knowledge will ensure that we continue to provide the same high-quality and relevant information for the region.
Following an invitation to countries that had signed up to the Budapest Commitments, we have now published four posts on the blog describing the actions taken to improve education in palliative care, national strategies, development of palliative care services and professionals. More contributions are expected and all will be summarised in an editorial in the European Journal of Palliative Care before the next EAPC World Congress in Prague.
Next EAPC congresses
Plans are well in hand for our next congresses:
30 May - 2 June 2013 – 13th World Congress in Prague
5 - 7 June 2014 – 8th World Research Congress in Llerida, near Barcelona, Spain
And the 1st European Paediatric Palliative Care Congress to be held in Rome 28 - 30 November (a collaboration between the Maruzza Lefebvre Foundation and the EAPC) is already oversubscribed.
Many taskforces are proceeding, often in collaboration with other European groups. Highlights include:
- The Taskforce on the Medical Specialisation in Palliative Care is producing a White Paper.
- A new Taskforce on Bereavement Care was approved and will be starting in the near future
- The Taskforce on Spiritual Care has received 971 responses from 87 countries to the online survey and is planning to publish the results in 2013
- The board commented on and formally approved a new publication from the Taskforce for Long-term Care and Older People
- A new White Paper, ‘Core competencies in palliative care’, by Claudia Garamondi, Phil Larkin and Sheila Payne was also formally approved. This paper pulls together the key principles about training in palliative care.
This joint venture by the EAPC, Human Rights Watch, International Association for Hospice & Palliative Care (IAHPC) and the Worldwide Palliative Care Alliance (WPCA) will call upon governments to relieve suffering and recognise palliative care as a human right. The Prague Charter builds on the experience of the Budapest Commitments and will urge governments to develop health policies that address the needs of patients with life limiting illness, ensure access to essential medications, ensure adequate training of healthcare workers and ensure palliative care is integrated into healthcare systems at all levels. A petition is being drafted and will be launched end December 2012/January 2013. An initial report will be given at the EAPC congress in Prague.
Our two days at La Torre della Limonaia were productive and busy yet well compensated by the idyllic surroundings and warm hospitality provided by our kind hostess, Sylvia Lefebvre, and her amazing team headed by Claudia Ruffo, who ensured superb and generously subsidised accommodation and catering.
Keep in touch…
The EAPC welcomes comments and ideas from members – the aim is to share information across Europe – and the board is keen to receive information from members and those working in palliative care. Please feel welcome to comment and contribute via our new social media links, or visit our website. And anyone is welcome to contact the president, Professor Sheila Payne, by clicking here.
EAPC BOARD MEETING - March 2012
I would like to take the opportunity to keep everyone aware of the work of the EAPC. I attend the Board meetings regularly and at the last meeting in March 2012 there were wide discussions on the developments within both the EAPC and Europe:
- There is now a blog linked to the EAPC website
There will be regular blogs posted and everyone is welcome to comment and suggest subjects for future blogs.
- The Congresses are being planned
* 7th World Research Congress of the EAPC - June 7-9 2012, Trondheim, Norway.
* 2nd International EAPC Research Network Seminar –
Ghent, October 18-19 2012
* 13th EAPC Congress, May 30-June 2, 2012, Prague, Czech Rep.
* 8th World Research Congress of the EAPC – June 2014, Lleida, Spain
- Definitions of palliative care
There is a reassessment of the definitions of palliative care
from the EAPC and a group will be considering this over
the coming months
- Integration of Oncology and Specialist palliative care
There is a Task Force looking at the service models in
cancer centres. This group is working in collaboration with European Society for Medical Oncology
- A new taskforce has been agreed looking at the palliative
care for people with intellectual disability.
- The EAPC welcomes comments and ideas from members – the aim is to share information across Europe and the Board is keen to receive information from members and those
working in palliative care. Please use the new social media contacts or contact the President Professor Sheila Payne
Consultant in Palliative Medicine
Wisdom Hospice Rochester.
University of Kent.
EAPC Board member
(published on the June issue of the APM News)