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About the EAPC

The European Association for Palliative Care (EAPC) was established on 12 December 1988, with 42 founding members and following important initiatives by Professor Vittorio Ventafridda and the Floriani Foundation. The aim of the EAPC is to promote palliative care in Europe and to act as a focus for all of those who work, or have an interest, in the field of palliative care at the scientific, clinical and social levels.

Since 1990 the Head Office of EAPC has been based at the Division of Rehabilitation and Palliative Care within the National Cancer Institute in Milan. In 1998 the EAPC was awarded the status of NGO – Non Governmental Organisation of the Council of Europe, and was transformed to “Onlus” (Non profit organisation with social utility).

By 2013, the EAPC has individual members from 47 nations across the world, and collective members from 54 National Associations in 32 European Countries, representing a movement of many thousands of health and social care workers and volunteers contributing to palliative care.

Distribution of EAPC collective members Associations on the European territory.

EAPC news

EAPC BOARD MEETING - October 2012


Dr. David Olivier

Lemon groves, a sparkling sea and a full agenda were the setting for the recent EAPC board meeting in Maoiri, Italy. Dr David Oliver, Consultant in Palliative Medicine, Wisdom Hospice, Rochester, Honorary Reader, Centre for Professional Practice, University of Kent, UK, and EAPC board member explains.

Members of the EAPC Board of Directors come from a variety of professions and countries bringing our different areas of experience and expertise to the table. We meet officially twice a year and although it’s true that on this occasion we met on the beautiful and enchanting Amalfi coast our president made sure that we had a very full agenda to discuss and approve. Here are just a few of the highlights from our last meeting held in Italy from 27-28 October.

Advocacy

The board discussed a range of advocacy matters in which the EAPC is involved. Of particular note is the work on palliative care and older people. On 25 September the EAPC, in collaboration with the European Union Geriatric Medicine Society and the Maruzza Lefebvre Foundation, launched a Manifesto on Better Palliative Care for Older People at the European Parliament on 25 September. (You can download a copy of the manifesto, available in six languages).

Collaboration with other organisations

Work is planned for guidelines for the symptom management and care of oncology patients in collaboration with European Oncological Societies.

Social media

Launched just nine months ago, our social media activities have resulted in an impressive 104 posts on the EAPC blog, which has attracted 18,662 visits so far including some 14,000 from Europe. The blog is integrated with our Facebook and Twitter (@EAPCOnlus) pages. Following the closure in autumn 2012 of the Russian and English language ‘Central and Eastern Europe and Former Soviet Union’ newsletter it has now merged with the blog. The editor, Dr Katalin Hegedus, has joined the EAPC social media team and her experience and knowledge will ensure that we continue to provide the same high-quality and relevant information for the region.

Budapest commitments

Following an invitation to countries that had signed up to the Budapest Commitments, we have now published four posts on the blog describing the actions taken to improve education in palliative care, national strategies, development of palliative care services and professionals. More contributions are expected and all will be summarised in an editorial in the European Journal of Palliative Care before the next EAPC World Congress in Prague.

Next EAPC congresses

Plans are well in hand for our next congresses:

30 May - 2 June 2013   –   13th World Congress in Prague
5 - 7 June 2014   –    8th World Research Congress in Llerida, near Barcelona, Spain

And the 1st European Paediatric Palliative Care Congress to be held in Rome 28 - 30 November (a collaboration between the Maruzza Lefebvre Foundation and the EAPC) is already oversubscribed.

EAPC taskforces

Many taskforces are proceeding, often in collaboration with other European groups. Highlights include:

  • The Taskforce on the Medical Specialisation in Palliative Care is producing a White Paper.
  • A new Taskforce on Bereavement Care was approved and will be starting in the near future
  • The Taskforce on Spiritual Care has received 971 responses from 87 countries to the online survey and is planning to publish the results in 2013
  • The board commented on and formally approved a new publication from the Taskforce for Long-term Care and Older People
  • A new White Paper, ‘Core competencies in palliative care’, by Claudia Garamondi, Phil Larkin and Sheila Payne was also formally approved. This paper pulls together the key principles about training in palliative care.

Prague Charter

This joint venture by the EAPC, Human Rights Watch, International Association for Hospice & Palliative Care (IAHPC) and the Worldwide Palliative Care Alliance (WPCA) will call upon governments to relieve suffering and recognise palliative care as a human right. The Prague Charter builds on the experience of the Budapest Commitments and will urge governments to develop health policies that address the needs of patients with life limiting illness, ensure access to essential medications, ensure adequate training of healthcare workers and ensure palliative care is integrated into healthcare systems at all levels. A petition is being drafted and will be launched end December 2012/January 2013. An initial report will be given at the EAPC congress in Prague.

Our two days at La Torre della Limonaia were productive and busy yet well compensated by the idyllic surroundings and warm hospitality provided by our kind hostess, Sylvia Lefebvre, and her amazing team headed by Claudia Ruffo, who ensured superb and generously subsidised accommodation and catering.

Keep in touch…

The EAPC welcomes comments and ideas from members – the aim is to share information across Europe – and the board is keen to receive information from members and those working in palliative care. Please feel welcome to comment and contribute via our new social media links, or visit our website. And anyone is welcome to contact the president, Professor Sheila Payne, by clicking here.

 

EAPC BOARD MEETING - March 2012

I would like to take the opportunity to keep everyone aware of the work of the EAPC. I attend the Board meetings regularly and at the last meeting in March 2012 there were wide discussions on the developments within both the EAPC and Europe:

  • There is now a blog linked to the EAPC website
    Blog: http://eapcnet.wordpress.com/
    Facebook: http://www.facebook.com/EAPC.Onlus
    Twitter: http://mobile.twitter.com/#!/EAPCOnlus
    There will be regular blogs posted and everyone is welcome to comment and suggest subjects for future blogs.
  • The Congresses are being planned
    * 7th World Research Congress of the EAPC - June 7-9 2012, Trondheim, Norway.
    * 2nd International EAPC Research Network Seminar –
    Ghent, October 18-19 2012
    * 13th EAPC Congress, May 30-June 2, 2012, Prague, Czech Rep.
    * 8th World Research Congress of the EAPC – June 2014, Lleida, Spain
  • Definitions of palliative care
    There is a reassessment of the definitions of palliative care
    from the EAPC and a group will be considering this over
    the coming months
  • Integration of Oncology and Specialist palliative care
    There is a Task Force looking at the service models in
    cancer centres. This group is working in collaboration with European Society for Medical Oncology
  • A new taskforce has been agreed looking at the palliative
    care for people with intellectual disability.
  • The EAPC welcomes comments and ideas from members – the aim is to share information across Europe and the Board is keen to receive information from members and those
    working in palliative care. Please use the new social media contacts or contact the President Professor Sheila Payne

David Oliver
Consultant in Palliative Medicine
Wisdom Hospice Rochester.
Honorary Reader
University of Kent.
EAPC Board member

(published on the June issue of the APM News)

 

 

Mission Statement

The EAPC brings together many voices to forge a vision of excellence in palliative care that meets the needs of patients and their families. 

It strives to develop and promote palliative care in Europe through information, education and research using multi-professional collaboration, while engaging with stakeholders at all levels.

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